Minai's recent post elicited me to submit this info (Minai has MSi, is treating for CPNi and stated she had Bell's Palsy at one time). My mother had Bell Palsey when I was about 12. Most of our weekends were spent in activities like fishing, picnics or mushroom hunting... all outdoor or in the woods.
I just recently discovered the state I grew up in is ranked 16th in the nation for Lyme disease. I still sometimes question if I have lyme even though my test (it wasn't a Western IG Blot) was negative.
Someone on this cite took their daughter to this doctor -- (Dr. Virginia Sherr). I researched her as she is located near my city.
I know this is a CPN board not lyme but the information was rather interesting:
Bell's palsy signifies paralysis of facial muscles related to inflammationi of the associated seventh Cranial Nerve. Physicians may not realize that this syndrome is caused by the spirochetal agent of Lyme disease until proven otherwise
Jeanneroz
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JeanneRoz~CPNi diagnosed & started protocol 4/2007, also HHV6, EBVii. CFIDSii/FM diagnosed: 6/07; 100mg/doxyii/BID ~ 250 mg AZITH M/W/F ~1st Tiniii pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. Sup
Addendum: this doctor is a
Addendum: this doctor is a psychiatrist, not an MD.......but she herself had Lyme for many years before it was diagnosed... she knows the frustrations we go through!
Jeanneroz ~CPN diagnosed and started protocol 4/2007, also have HHV6, EBVi. CFIDSi/FM diagnosed: 6/07; Protocol: 200 mg/doxyi daily~ 250 mg AZITH M/W/F ~1st Tindi pulse 4/17/08- 1 250 mg. tab for 2 days. supplementsi
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JeanneRoz~CPNi diagnosed & started protocol 4/2007, also HHV6, EBVi. CFIDSi/FM diagnosed: 6/07; 100mg/doxyi/BID ~ 250 mg AZITH M/W/F ~
1st Tinii pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. SupJeanne, Phychiatrist in the
Jeanne, Phychiatrist in the US are MDs. Psychologists are not MDs. FYI.
Louise
CFS. CPnPositive. BbPositive. WheldonCAP began6/24/07. NACi,Doxyi, Roxi,FullTiniPulses. Intermittent Cholestyramine,1-2packets, at bedtime,most often with pulses,and as needed, for Phorphoria & liposacaride Endotoxini Die-OffExperiences.
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Louise CFSi, CPN+/Bb+, Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphoria & Endotoxinsi PRN, Doxy100daily, Roxi300BID, Tinii 500mgBID pulses, VitD3-4000IU, Magnascent Iodine,{S.O.D.3/QD[KAL Brand], +Pyruvate 3.75G +SAM-e For Energy support
Eek, thanks Louise... I knew
Eek, thanks Louise... I knew that! (psychiatrists treat mental issues and have the MD license to prescribe meds... and psychologists do not).
I was just wanted to be sure that no one thought she was an MD to go to for CPNi....(hmm.... at least I don't believe so!)
Jeanneroz ~CPN diagnosed and started protocol 4/2007, also have HHV6, EBVi. CFIDSi/FM diagnosed: 6/07; Protocol: 200 mg/doxyi daily~ 250 mg AZITH M/W/F ~1st Tindi pulse 4/17/08- 1 250 mg. tab for 2 days. supplementsi
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JeanneRoz~CPNi diagnosed & started protocol 4/2007, also HHV6, EBVi. CFIDSi/FM diagnosed: 6/07; 100mg/doxyi/BID ~ 250 mg AZITH M/W/F ~
1st Tinii pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. SupI have not been tested for
I have not been tested for lymes. when I was 21 (and just started pediatric nursing which involved taking care of cystic fibrosis patients), in one year I had strep throat, bells palsy, and somekind of virus where I got ulcers all in my mouth. I have always felt that I contracted CPNi with one of these. probably where i got my ebvi and cmv, and mycoplasma pneumoniae also.
Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpn, myco, EBV, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone,
estriol, synthroid, pulseflagyli,tinii<___________________________________________________________
Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBVi, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone,
estriol, synthroid, pulseflagyli,tinii<Bell's Palsy can be
Bell's Palsy can be caused by a number of things, not just lyme disease:
http://www.mult-sclerosis.org/Bellspalsy.html
I had it for a couple of weeks when I was still relapsing remitting and it took several months before the droop on one side of my face completely went. In multiple sclerosis it is caused by a lesion in the pons area of the brainstem, leading to the seventh cranial nerve damage.............Sarah
An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent. Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.
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