MediTest
27 Apr 2018
Author
mycoplasma1
Title

Bartonella induced MS

Body

Thought this link was interesting.

Notice the patient is a vet.

http://www.uvaldeleadernews.com/articles/2008/11/17/news/news1.txt

Chris

Comments

FASCINATING and fortuitous chain of events! I'm going to email this guy and let him know about cpn. It might be the missing link for them. I don't like the idea of only two abx, so hearing about the third might be helpful for them. For anybody in North Carolina or Texas, sounds like these are a few doctors you might want to investigate for treatment.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Sorry, that was a year and a whole different computer ago. I'm not finding anything in this computer's favorites or memory on that site. If you google his name and MS and cat scratch fever, you might find it. I remember some conversation there about MS, cpn and cat scratch fever and Lyme (sort of a 'which came first' conversation). If I do come across it, I'll post here.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thanks, Chris - this was a wonderful article!  I was thinking like MacKintosh -  keeping those doctors' names handy would be a good idea.  To me it also shows more doctors are bucking the vice-grip criteria regarding the treatment of tick-borne illnesses - an even bigger step towards getting more on board with what is really involved in defeating stealthy bacteria.

Possibly bartonella is an 'easier' bug to squash than Bb or CPn?  I did like a phrase they used:  "Bartonella-induced MS".  Possibly several pathogens cause MS, individually or altogether.  Maybe that is what accounts for the varying degrees of improvements people are experiencing (in addition to the length of time they've been infected).  His improvements were really remarkably quick, it seems.

Kelly

Diagnosed FMS Feb '07.  2x/day: 600 mg NAC, 100 mg Doxy, 500 mg Amoxicillin, 2000 iu Vit. D.  450 mg Valcyte.  250 mg Azi M/W/F.  500 mg 375 mg Flagyl pulses every 3-4 weeks.  Started CAP June '07. 

Mine were quick, too, Kelly. I think it matters hugely that we are treated the minute the diagnosis is made.

In my search for this veterinary doctor, John Barnes, I found a physics websiste that was discussing Barnes' treatment.  I joined the site and posted a brief description of cpn and its treatment there.  I gave them our website info. 

Since there are a ton of doctors, educators and researchers on that site, it's good to put the info out there.  I'm trying to drop my pebble into a lot of bodies of water, hoping to push a lot of ripples out to shore.  We'll see.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Sounds like they used Rifampin and Zithromax on him since this is the most common combo treatment for Bart.

CAP since 11/06 for Cpn, Lyme, Bartonella, Babesia, Myco P, CMV, HHV-6 infections.
Rifampin 600mg daily, Zithromax 500mg daily. NAC 2250mg daily. All other supplements. Now Bicillin LA 2.4 mil injection weekly.

My concern is, if he also has cpn, he's not done yet.  That's part of why I'm going to contact him.  Sorry, Notdoneyet, didn't mean to usurp your screen name. Image removed.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

"I'm trying to drop my pebble into a lot of bodies of water, hoping to push a lot of ripples out to shore."  Well said!  CPn needs to be added to the panel of tests for MS, Lyme, FMS et al.

I re-read and realized the veterinarian had IV treatment.  That could also help explain a quicker response (generally speaking..).  He was also really fortunate to have friends who were not only in the medical field but aware of the need for multiple and long-term antibiotics to boot.

Kelly

Diagnosed FMS Feb '07.  2x/day: 600 mg NAC, 100 mg Doxy, 500 mg Amoxicillin, 2000 iu Vit. D.  450 mg Valcyte.  250 mg Azi M/W/F.  500 mg 375 mg Flagyl pulses every 3-4 weeks.  Started CAP June '07. 

Totally agree.  It's the same kind of serendipity that gave all of us this treatment.

Sorry, Sarah, but if you hadn't fallen gravely ill, many of us wouldn't be alive today to tell the tale, so in a twisted sort of way, your misfortune was our very good fortune.  Image removed.  The universe works in bizarre ways.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Isn't that the truth, MacK.

Our daughter tested positive for two strains of bart, plus Cpn, plus Lyme.......was treated and she is doing GREAT now!!! (I need to add this to my blog)

But Jim and I had the very same conversation the other night. If he hadn't gotten MS, and in turn Sarah had not shared her experience (and yours, Rica's, Life on the Ice, Marie's etc...) our daughter most likely would have languished with a plethora of psych diagnosis and not had much to look forward to. It was like playing 6 degrees of separation with Kevin Bacon......Maybe we can play 6 Degrees of Separation with Sarah Weldon.......Has a ring to it, doesn't it?

One other thing about this article........We need better testing!!!!!!!! This gent was lucky enough to have state of the art testing to "prove" he had a chronic bart infection. But what about the rest of the poor Sods with MS who don't have this kind of access to testing? Sure there are some of us who are treated empirically, but nothing will every change until a sure fire way to detect these bugs is developed. I can dream, can't I?

Ok, one other thing......anybody else think he has more than just Bartonella???? Was he treated long enough to stay well? and I agree was he treated with the right combo of drugs to really do the job?

---------------
"Chance favors the prepared mind." --Louis Pasteur

Husband treating MS with CAP

Article for MIC abx tx for Bartonella research done in 1995;

http://aac.asm.org/cgi/reprint/39/11/2387

ANTIMICROBIAL AGENTS AND CHEMOTHERAPY, Nov. 1995, p. 2387–2391 Vol. 39, No. 11

0066-4804/95/$04.0010

Copyright q 1995, American Society for Microbiology

MICs of 28 Antibiotic Compounds for 14 Bartonella

(Formerly Rochalimaea) Isolates

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Sojourner - What combo did your daughter use to get well? Glad to hear she is doing well!

Chris

CAP since 11/06 for Cpn, Lyme, Bartonella, Babesia, Myco P, CMV, HHV-6 infections.
Rifampin 600mg daily, Zithromax 500mg daily. NAC 2250mg daily. All other supplements. Now Bicillin LA 2.4 mil injection weekly.

She was given Tetra, Mino, Doxy, Diflucan, Biaxin, Mepron, Azithromycin,Plaquenil. Not at one time!!! of course and in varying combos. Everything but the big guns, Rifampin and Tini/Flagyl..........but remember she was young, and had probably been infected for only about 4 yrs.

Lexy

---------------
"Chance favors the prepared mind." --Louis Pasteur

Husband treating MS with CAP

Lexy,

When you first came here, I remember your despair for your daughter.  It is great to hear that she is doing so werll!

Chris, I apologize for intruding, but this is such wonderful news!

Uvalde, TX was one of the three small Texas towns we considered moving to in1949 (!), and the Vet School in Raleigh is where we have taken some very sick animals in the last twenty years - all of them were saved.

Rica

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Thanks, Rica. It is pretty amazing. She's preparing for college (she'll be a senior next year) and she has reflected on how her quality of life has improved. Truth be told she was not all that "on board" with treatment at first. She declared me "CRAZY" because of my association of her symptoms with bacterial infection, never used it as an excuse, etc.

Whoda thunk, she's a believer now, and very interested in Psychology, maybe Psychiatry ( I actually think she could do a lot of good with her personal experience).

---------------
"Chance favors the prepared mind." --Louis Pasteur

Husband treating MS with CAP

Yay, Lala!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thank you so much Lala for posting that website.  I had previously seen it but didn't read down far enough to see Mac's posting.Mac, I emailed the link to Dr Barnes so that he may read up on it as well.  Are you still trying to locate him?  I know the original posts were a year ago.  Have you finished your treatments?  If so, how are you doing since then?