Cpnhelp.org

aint that the truth, that is exactly the course of action my "fired" doctor took with me!

 

peace

r

 

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 days

That is very typical that they didn't get more excited about such good results for CFSi from the Azith. Like you said 80% improvement is very good for CFS especially in such a short time frame. But as we all know most doctors have an extreme phobia about using antibioticsi for longer than a couple of weeks let alone for months. Beside the drug companies make more money getting us all hooked on meds.

Same thing happened to me. I recall the first thing my GP wanted to give me was an anti-depressant too. I told the doc..."Look.... I have some sort of infection & toxic overload going on. I don't need an anti-depressant." (This was just from my gut I had not even read about CFS or FM yet.) Doc said to me, "Well, I just can't give you antibiotics not knowing what is wrong with you. It could mask it."  (whatever is really wrong with me) I am eager to get on the Azith. Thanks for sharing this info JeanneRoz!  Slainte!  MM

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FM dx 2002. Started 2008: NACi 4/19 (2400 mg daily 7/21) Start list supplementsi + Iodoral 12.5 mg. daily: 6/19  FIRi sauna, 9/4 100 mg Minoi, 11/3 Azith - 12/1 MWF

After talking to many in the Lyme community and seeing UNDER OUR SKIN (a must for everyone!) the consensus is that two issues are involved in under treatment of chronic infectionsi in the CFSi/Lyme population: 1. Pressure on MD's from Insurance companies not to treat with long term abxi. Medical Licenses are being revoked at an alarming rate. 2. Fear of Abxi resistant microbes. Just think of all of those misdiagnosed CFS patients out there who may not follow proper treatment protocol or may be undertreated or not properly treated by their MD. We have no new abx in the pipeline right now.

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CAPi since 11/06 for Cpni, Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi. Doxyi 200mg daily, Zithromax 250mg MWF. NACi 2250mg daily. All other supplementsi.

And what % of improvement is gotten on the antidepressant? 10%? 20%? I have to laugh at how readily you can get rx for a very potent brain changing medication like antidepressants which cause all sorts of side effects, and the great hesitation to rx antibioticsi

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Plus undertreatment of an infection leads to only the resistant portion of the bacteria's population to survive. What if the accepted treatment time for tuberculosis was too short to eradicate it?

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

I'm very interested in knowing why doctors are so bent on prescribing these frightening anti-depressants?  Recently, I was prescribed Cymbalta for pain.  By the 3rd day one of my friends was taking me to the hospital because of it.  Then - after only 3 days on that medicine - after cessation I had on day 4 difficulty breathing - I had to buy an inhaler.  Then beginning day 5 I began getting shooting pains up the back of my head - just 1 shooting pain every 1-2 minutes - although I found they were also initiated whenever I looked side to side.  And I thought "What in the world is this now??"  I did an internet search and found out that there are many, many people out there who experienced these identical experiences after cessation of drugs like Cymbalta.  They call them 'brain zaps'.  I experienced those for over a week.  Day 6 - I went to bed without a black eye but woke up with a black eye.  I really have no doubt this was also a side affect.

The doctor who prescribed this for me didn't even know anything about the side affects that I experienced - and that is very frightening too.  Apparently when you stop the med you are supposed to follow a very specific tapering schedule.

But anyway.. For pain whatever happened to good old morphine, and for anxiety and depression whatever happened to good old Valium??  I've never heard these types of horror stories regarding these tried and true standby's.  And they are all 'addictive' but what is more dangerous regarding addiction - a pill that you can take on occasion on an as-needed basis or a pill which requires you to take it every single day?

Kelly

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Diagnosed FMSi Feb '07.  2x/day: 600 mg NACi, 100 mg Doxyi, 500 mg Amoxicillini.  250 mg Azi M/W/F.  Flagyl pulses every 3-4 weeks. 

Kelly- my experience as a mental health professional is that the large majority of people tolerate the antidepressants like Cymbalta okay, and it can really help with pain problems. But doctors have to be knowledgeable about side effects or reactions that can happen and how to taper off them, and a lot of GP's are not. "Good old morphine" and Valium had lots of good old addiction and were widely abused because many people did not use them only as needed, or the need increased quickly (tolerance). I'd hate to go back to those days in my profession. The modern antidepressants are not addictive although they are  overused.

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Jim, I understand your point.  I was really referring to your comment "And what % of improvement is gotten on the antidepressant? 10%? 20%? I have to laugh at how readily you can get rx for a very potent brain changing medication like antidepressants which cause all sorts of side effects, and the great hesitation to rx antibioticsi" but instead referring to Morphine/Valium in place of rx antibiotics as yet another 'great hesitation'.. 

I just really think there are a lot of others like me who have extreme difficulty with these new 'very potent brain changing" meds, ditto most pain meds, and feel there's maybe too much hesitation and resistance to trying the old standby's - particularly when it's an individual who in addition to having unfavorable reactions to so many of the newer pain pills - would not require daily use of those meds.  So in lieu of having occasional access to something that will truly help, but can be addictive, the preference today is to push the daily use of these SSRI's whose alleged (potential) side affects are downright frightening (Virginia Tech massacre, suicides), and whose long-term side affects aren't even known yet.

But again I do understand your point about abuses of morphine and valium in the past.  However - there were abuses of cold and sinus meds too - maybe there are other ways to at least limit if not prevent addictions or abuse i.e. strict limits on the quantities that can be prescribed or given per month to an individual, and a central tracking system to ensure that that quantity is not surpassed.

Kelly

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Diagnosed FMSi Feb '07.  2x/day: 600 mg NACi, 100 mg Doxyi, 500 mg Amoxicillini.  250 mg Azi M/W/F.  Flagyl pulses every 3-4 weeks.