awaiting Lyme results, should I get tested for Cpn too?
I am new here, and not sure where to start. I've been trying to get a diagnosis for my health problems for the last 3 1/2 years or so, with no luck. In 2008 I started feeling fatigued and spacey, sort of detached and unfocused, hard to describe since it has morphed over the years from something that seemed like bad depression into more of a cognitive problem (major awareness/attention deficit), with spells of derealization, but here is my current symptom list:
brain fog (feel like my brain hasn't woken up for the last few years, sort of drugged)
mild to moderate fatigue
a weird emotional flatness
severe dry eye, mildly dry mouth
stomach bloating/reflux (this fluctuates, and was present before my brain symptoms in mild form for years but I've had some terrible spells since then)
mild rosacea (a contributing factor to the dry eye but not the main source)
The Lyme doctor I saw thinks my lack of chronic pain doesn't fit with what he's seen in Lyme patients but he acknowledged that everyone presents differently, and said that it fit more with a viral infection, so I'm awaiting test results for EBV, CMV, and HHV6 also (I confused CMV with Cpn and that's how I ended up here, actually).
I've tested normal in screenings for autoimmune problems (ESR, CRP, ANA, RF, and a couple of others I think) as well as thyroid tests, including T3 and antibodies. A hormone panel showed low estrogen but supplementation hasn't helped.
I've benefitted from iron supplements (for low ferritin) and DHEA (that was low too), and my stomach problems might be responding to an herb I was prescribed by a naturopath, but it seems clear to me that something else is going on.
I didn't look into Lyme for a long time because I never had a flu-like illness before everything else started, but I've since read that it can happen that way, and I'm wondering if Cpn is the same way, too, creeping up without an obvious acute phase? All of my symptoms could fit the description of Sjogren's Syndrome, and I wonder if I should retest for that, but from my readings it sounds like autoimmune disorders are most likely triggered by infections anyway so I don't know how helpful that would be.
Is there a Cpn test that is more reliable than others? Also, do people retest after a round of antibiotics like they sometimes do with Lyme, to get a more reliable result? Basically I'm wondering if I have good reason to tell the doctor 'test me for this, too'.
I should add that I have a CD57 of 39 (for some reason my primary doc tested that and nothing else). My white blood cell count is now borderline low, but wasn't when this all started
Sorry for this long post....I don't know if I belong here but after reading some posts and other stuff I was impressed by the quality of the information and discussion at this site, so I thought I would seek input.