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Mary Ann
SPMSii. Dx 1991. Weldon CAPii; 3/08 NAC 2400, Doxy & Azith. 3rd metroii pulse 7/27/08
At 2nd pulse end
Submitted by macorn on Fri, 2008-07-11 17:23. I'm on the fifth day of my second full pulse. I've had no problems and am wondering if I should continue the pulse more days. The reason for the question is that I think I have read here (someplace) that more days are better. I'd like to be off the pulse, I guess because I keep waiting for negative reactions and feel that days are consummed with taking pills, but if it would be effective to stay on, than I will. BTW because I am not having negative reactions, I worry that this "isn't working" for me. So, 2 questions: 1) should I go more days and 2) is it common to not have negative reactions. This site is a lifeline and I actually feel close to you all. Look forward to hearing from someone.
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Hi Mary Ann, I think it is
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
From the horse's mouth:
From the horse's mouth: while I've had little reaction to the meds, I also think one's body needs time between pulses, especially at the beginning, to heal. Give yourself a break, both mentally and physically. You'll clear the toxic waste created by die-off and you'll get the mental 'vacation' from the third abxi.
I'm on my seventh week of flagyli, I think (I don't keep such close track anymore), and I'm having little reaction these days. But it's not something I'd recommend to you so early on. Remember, you didn't get sick overnight and you will not clear the illness overnight. Rushing it can cause more harm than good and set you behind. You're already on the right track, so be patient.
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi