Anyone taking Savella for FMS???

Submitted by Lynnp on Tue, 2009-10-27 13:31

I took Lyrica and gained 20 pounds so I stopped it.  Lately I have had a lot of pain so thinking about Savella.  My doc gave me some samples.  Some of the side effects include nausea (which most of us have anyway), insomnia (which I have real bad), constipation (again, IBS-c), etc.  I also take Wellbutrin and Lamictal.  Should I try it?  I also read the mfg website that says FMS is caused by spinal cord injury I think it said.  I had back surgery and got FMS a few months after but not everyone has back (spine) problems so I don't understand how they can say that.  Apparently they don't get it either.  I guess Savella and Lyrica, just blunt the pain but they don't get to the cause of course.

A whiplash can be termed a spinal trauma (problem) and is a frequent initiator of FMS for some people.   It is an observation based on good history taking on the part of some providers that treat chronic pain issues such as FMS.   I don't have any comment to make on your question regarding Savella, I have not read anything about it.  I have had a dx of FMS however I take nothing for it and currently don't actively identify with that dx which pleases me very well.

Perhaps kicking this up may get you some feedback for the question.  Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Lynnps I had wip lash, and dengi fever in '91' and was fed many antibiotics as a child.I was told these are the reasons for Fibroimialga.I was diognosed in 2003.My new doctor seems to believe that my pain and problems come from the CPN and once we have this sorted my pain should stop.( she seems to believe FMS and Cronic fatigue will be a thing of the past in a few years time people will be treated with the CPN protocol instead.)That's why I am doing all of this so I can get my life back.My energy levels etc have always been good(before the protocol started) just my pain that has ruled my life.I used to sleep so badly until I started melatonin and 5-HPT i now get up to 6-7 hours straight sleep,they are truely amazing and can be got on line very cheeply.Hang in there.(PS I have also started a massage once a week to help my body recover.It's very painful but combined with the protocol i think it will truely help in the long run.)

sunshinecoast Australia.Fibromyalga suffer recently informed I have CPN started on Doxy 50ml twice a day 21.2.09 

Hello Lynn, I was dx'd with FMS in the beginning had severe debilitating symptoms  (I never used to believe in it).  My symptoms have improved dramatically as I have progressed on CAP.

Now most of my problems are in my neck and shoulders.  I intentionally stayed away from taking any of the "approved" drugs as I just didn't want to take them -- too many side affects.  But we each have to decide what is best for ourselves.

This quote from a link doesn't really (IMO) give much credibility over a placebo.  (milnacipran is the name for Savella), plus you may wish to consider the fact you are on an antidepressant.

"In clinical trials, milnacipran was significantly better than was placebo at reducing pain and other physical symptoms in study participants who had fibromyalgia and did not also have depression or anxiety."

 For what it's worth....

 

JeanneRoz ~ DX'd w/ CPN 4/2007; 6/07 -"officially" dx'd w/CFIDS/FM; also: HHV6, EBV, IBS-C, 100 Doxy:BID; 500 mg Biaxin BID; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni