Anyone here diagnosed with Superventricular Tachycardia?
I have been suffering from irregular beats since 1995 (pac's, pvc's). I tried beta blockers early on but had a low resting heartbeat to begin with and they brought it down too much and I was also cold and tired all the time.
I just learned to live with the irregular beats, episodes of chest pain and tachycardia. All in all I have probably been to the ER 25 times over the years for this but they never caught the fast heart rate, only pvcs, pacs and regular tachycardia. They basically thought I was having panic attacks and called me a nut.
I have had multiple echo's, nuclear imaging, stress tests, an angiogram, a CT angiogram, much too much testing. All negative, except for mild mitral, tricuspid regurgitation on the echo, which they said was normal.
I have been treating for Lyme, Bartonella, Cpni, Mycoplasma since 1996 and have very few symptoms left, but the heart irregularities remain.
I have noticed more irregular beats in the last few months related to vagal irritation and provoked by swallowing, moving my torso, adrenaline etc...
2 nights ago I swallowed some pasta and turned around and suddenly went into a very fast rhythm. Usually I pop out of this very quickly, but this time I did not. My heart went from 60 to 200 in a split second.
I tried various vagal maneuvers to get it out of the fast rhythm but nothing worked. After 15 mins (an eternity at the time) I called an ambulance. The paramedics saw SVT at a rate of 177bpm on the monitor and gave me a shot of adenosine to slow my rhythm. It worked immediately but was very scary. I thought I would die right there.
At the hospital the next day my EP cardiologist said I was a very good candidate for cryoablation. Looking back I realize this has been going on for too long and really affecting my life. I thought the irregular beats would go away with Lyme/cpn treatment but so far no go. I am supposed to treat Babesia next, and there is a case for Babesia causing this kind of thing, but I honestly am scared of all this.
Apparently ablations have a 95% cure rate for simple arrhythmias like this one. I am not a fan of meds like beta blockers for life, so I am seriously considering the ablation. Many young athletes choose to do it and go on to live normal lives.
If there is anyone out there with SVT I would love to hear from you!
Thanks for any advice.
Be well all.
- Login or register to post comments
- Email this page
- Printer-friendly version
My brother had the ablation. I think he was in his late teens when he had the ablation performed. He was hooked up to the 30 day cardiac monitor and the highest he went was 300 BPM. didn't even know that this high of a number would register, but most of his readings were around 200-220. He had the ablation and has lived a normal life symptom free for past 6-7 years. He even played soccer for the first couple of years after his surgery.
His attacks never lasted as long as yours though. His eposides would last a few minutes and then would self correct itself. during those few minutes, he would passout or be on the brink of passing out. But from the first episode, to the 30 day monitor to surg was less than 6 months.
I wish you peace with your decision. From a family member, it is very scarey. I can't imagine being in your shoes.
Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, hormonal inbalance. right arm neuropathy-getting better. cpni, myco, EBVi, CMV, HHV-6. Capi began in 6/07. NACi 2400mg, minoi 100mg bidi, biaxin 500mg bidi. cytomel, flagyli bid continuously.
Hey Mycoplasma,
Sorry to hear you're still having troubles with this. I'm assuming you've tried magnesium to see if it helps at all?
Hang in there...
Treatment for Rosaceai
Hi mycoplasma, I also have the mitral valve prolapse and have fibromyalgiai. About 2002 I really started having problems. From 2002 to about 2005 it got worse and worse. Doc said I was born with it. Went to the firestation 3 different times in about a year around 2004 or 05. They gave me the shot that stops your heart and hopefully it starts again correctly. Mine did. One time my heart was racing at 225 beats per min. When my heart stopped it was the worst pain ever. I asked them, what if it didn't restart and they said - That's what the paddles are for!!! Yipes!! They were racing me to the hospital each time so it was pretty scary. After the third time I went to a heart surgeon. We tried meds but didn't help. So I had a heart ablaution and have had no trouble since. I really recommend it. One time I waited about 30 minutes and that is the worst thing to do. All of that can damage your heart too. They said my heart seemed to be okay thankfully. It was a breeze. I felt nothing and was not even put completely to sleep. I even watched some of it on the monitor after the doc told me to look. No big deal! Really! The worst part is thinking about it and getting nervous beforehand.
Talk to people and get their recommendations. I went to a heart clinic with a number of surgeons. Let us know how it goes.
FMSi/CFS 1995. tinnitusi, ibsi, sinusitis, EBVi, NACi 2400mg, valtrex, cortef, armour, doxy, biaxin, tinii, vita c 5 - 10,000 daily
FMSi/CFS 1995. tinnitusi, ibsi, sinusitis, EBVi, NACi 2400mg, valtrex, cortef, armour, doxy, biaxin, tinii, vita c 5 - 10,000 daily
I know it is a scary procedure to do but I got to the point that I was afraid I would die. Or that my heart would be damaged. Then, I guess I figure - if it's my time to go, it's my time to go! Sometimes I am so ready to go anyway!!!!!! (Go to heaven I mean!) If I'm still here that means that God isn't finished with me yet!
FMSi/CFS 1995. tinnitusi, ibsi, sinusitis, EBVi, NACi 2400mg, valtrex, cortef, armour, doxy, biaxin, tinii, vita c 5 - 10,000 daily
They are doing a cold induced ablation at Mass General Hopital. I have a friend that had it after doing everything offered and breaking through.
The procedure went very well and she is cured for a year now.
squirl Man
Mycoplasma, ablation would be a suitible treatment for you.
yılmaz.
KEREM'S TAKECARER;
Suspıcıon of MSi (transient nystagmus during conjugated gaze on february 2008, blepharospazms and some optic complaints on february 2009-no plaque on MRI), Vit D3 started 400 IU and elevated to 2000 ıu ın 40 days.
If its sinus tachycardia mostly, ablation wouldn't be helpfull but if you experience SVT manytimes a year ablation is ok.
yılmaz
KEREM'S TAKECARER;
Suspıcıon of MSi (transient nystagmus during conjugated gaze on february 2008, blepharospazms and some optic complaints on february 2009-no plaque on MRI), Vit D3 started 400 IU and elevated to 2000 ıu ın 40 days.