MediTest
27 Apr 2018
Author
Andesine
Title

Any Facebook members on here?

Body

There are a number of MS groups on Facebook, I suspect there may be other groups for ME etc. As I find them I post info and send them here. If you have an account do a groups search and see what you can find.

Comments

Yep I'm on Facebook. Never really thought of it for that purpose, but it's a great idea.

CFSi and Prostatitis for 2 years.

Doxy 200mg/day. Azith 250mg MWF. NAC 1200mg/day.

CFSi and Prostatitis for 2 years. Doxy 200mg/dayAzith

I am on Face as well, I will have a search for an ME/CFS group.

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Last night I went on Face & joined all the big ME/CFS, FMS, Lymes groups & posted a brief reference to our site & how it has been helping me.  This should reach about 1500 people, if all the members read the wall.  I will do it again in a few more weeks. 

I actually posted one of my picss on Canada's Photo Contest sight & got 2 votes.  I am really excited, lol... I didn't think I would get one vote!

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Careful not to push it too hard. Facebook are clamping down on what they consider spamming. Members can hit the report button and if the FB guys see several identical posts in a short space of time they will kill your account and delete all your posts and there's no arguing. Some friends got trashed for no real reason that I could see. 

Berkshire, UK. Diagnosed MS Feb 4th 2008.

NAC 600mg Feb 9th 2008. Increased to 2400mg Feb 19th plus all supplements.
No GP/Neuro support. Self medicating with assistance from D W.
Started Doxy 100mg 20th April 2008

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.No GP/Neuro support. Self medicating with help from David Wheldon. Started CAP 20th April

Thanks Ande,

So far, so good!

I didn't send the same thing to each, which in hindsight, was more work, but, was for the best!

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Maybe we should have an cpn group on facebook? Or is there already one ?

Male 38 years (Germany),CFIDS, IBS, Enterovirus, Cpn and Bartonella, Dientamoeba fragilis positive. Started Cap on 02/19/08, Currently taking Bactrim, Flagyl, soon adding Malarone and Clindamycin for suspected protozooa. 

I just put up a group on facebook . Just go to groups search for 

CPN - Chlamydia pneumoniae

Male 38 years (Germany),CFIDS, IBS, Enterovirus, Cpn and Bartonella, Dientamoeba fragilis positive. Started Cap on 02/19/08, Currently taking Bactrim, Flagyl, soon adding Malarone and Clindamycin for suspected protozooa. 

Ummmm need to think about joining that. My clients contact me via Facebook and I'm not sure what effect that'll have on business Image removed.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.No GP/Neuro support. Self medicating with help from David Wheldon. Started CAP 20th April