Forums › Cpnhelp Discussion Forum › Cpn treatment experiences

any articles on ....

Submitted by lee on Sat, 2005-12-17 09:40
okay I forgot....... any article that i can give my doctor. He is afraid of me becoming resistant to antibiotic in case I get a secondary infection. He is also afraid of the long term use.
‹ not happy what to expect. ›
Submitted by Sarah on Sat, 2005-12-17 09:54.
I should insist that your GP does contact Charles Strattoni.  You can let him have a copy of David's pages: http://www.davidwheldon.co.uk/ms-treatment.html  Here he goes into the fact that this treatment guards against the build up of resistance, which is the last thing a microbiologist would want to happen.  Both Stratton and David know what they are talking about: it is their life and they are bound to know far more about these things than a GP.  Anyone who contracts TB has to take long term antibioticsi, nobody would argue against it then...........Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.
Submitted by mrhodes40 on Sat, 2005-12-17 11:49.

I agree David's pages are a clear overview of hte issue and treatment. Then you might consider giving your doctor the address of cpnhelp.org. Let him or her know that there are physicians pages with, and make this clear, ENTIRE CITATIONS FROM PEER REVIEWED LITERATURE for him or her to peruse in the physicians pages. This is important because very few sites have entire citations. Most of the internet reading world has to read the abstracts (like on pubmed) which is a summary of the work. NO one really knows what the work says unless they read the whole citation. When we put the material on the site, any whole citations we have are on the physicians page and I did this on purpose because MD's do not want to spend hours reading abstracts and try to base a treatment decision essentially on a summary (which often when you read the whole cite turns out to have a different flavor). So, you can let your doc know this is a supported approach and he has the available resources to do it.

Good luck
marie

On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithromy

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.

User login

(If you're a human, don't change the following field)
Your first name.

Navigation

Book navigation

Donations allow us to avoid advertising to keep the site clearly member and mission focused. and are used to pay for site maintenance. Any additional balance is held in trust for future needs or will be donated for research. We are not non-profit so it's not tax deductible. Donations and expenditures overseen by a committee of members.
Write your own amount to give
Amount $

Syndicate

Syndicate content