MediTest
Submitted by Teteris on Sat, 2008-08-09 08:58

Can anybody out there help?

What happens if I have an Abx. holiday for a week? and do I just return to the protocol immediately afterwards in full? I'm OK with this.

I have been Capping for 116 days and finished 5 pulses. My improvement since day one was fast to begin, and then slowed to a definite, but unmistaken GRADUAL return, and NOT decline, to historic almost forgotten abilities. Strange how the mind erases memories which may remind us of the ease of an activity when it has become hampered, anyway, I digress. I was measured up for a wheelchair 6 months ago, and I can now hobble around the woods a'la dog.

I have been struggling through with the med's. and supp's. under virtual total financial ruin, and I now cannot afford the next phase of my self induced treatment, for another week or two.

I plan to maintain my supp's. Mainly NAC, ALC, ALA, CoQ10, Folic, Vit.C. on slightly reduced quantities till I can afford the next set of Abx's. and then ramp up the peripheral supp's. as soon as I can.

PS. On a different note, the HBOT which I take once a week is not for any other reason than I operate the Oxygen chamber in Reading (UK), and then pop in for a session afterwards as I think it helps a bit rather than not as I'm there anyway. So I am only letting you all know for the record.

I look forward to some guidance, reasurrance and or chastisement?Nah!

Teteris- First off, I'm really, really glad to hear about the rapidity of your improvements and how well you've been able to ramp up the protocol. There's a story in there I'd like to hear more about.

There are medical reasons why physicians guiding CAP's have given a week or two antibiotic break (runaway porphyria, liver enzymes elevated) and such, so it is not unheard of. Somehow I'm more leary of someone with MS letting a neuro-infection get any momentum again then I am with a more disseminated infection as we see with CFS.

If you have an active prescription and live in the US you can get many generic meds like doxy and flagyl for $4 at Walmart and Giant Eagle. Staying on even one replication inhibitor would be better than none. But... i you have to you have to. In vivo (in the body) Cpn is not a fast replicator so one week is unlikely to result in much.

On the supplements, if you are going to do anything put all your emphasis on doing a full dose of NAC as this will limit any new EB's that are produced once inhibition is lifted. Better to drop other supplements and keep this one at full strength.

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Thanks Jim, mind more at rest.

Sarcoidosis 10yrs. before dx.SPMS-2003 that's it. Research - Don't Believe Them.

CAP 16/04/2008-05/10/09 -  Now Daily: 10kIU D3, Vit.C 1g, Calcium, Ginkgo Biloba, Pro-biotic yog, L-Arginine 1gx6, Magnesium Glycinate 220mgx6.

Second off, Jim, Eriks lives in the UK, where prescriptions are still expensive if given privately.

Eriks, firstly you might find that you can get the same stuff from here, for less than taking your prescription to the local pharmacy.  Jim's idea as far as supplements goes of just making sure you continue NAC every day must be the best one. With progressive MS I too would be wary of stopping at this stage even for a week, which is the chastisement bit. You are doing so well, you don't want to risk anything......................Sarah

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah, thanks for being gentle with me.

I've noted what Jim and yourself have said and it's pretty much as I had hoped might be the case. Please advise David I'm on course, and climbing the hill...

(It's got clouds on top? and birds circling) 

Thank You!

PS I will check out the link.

Sarcoidosis 10yrs. before dx.SPMS-2003 that's it. Research - Don't Believe Them.

CAP 16/04/2008-05/10/09 -  Now Daily: 10kIU D3, Vit.C 1g, Calcium, Ginkgo Biloba, Pro-biotic yog, L-Arginine 1gx6, Magnesium Glycinate 220mgx6.

I have used the pharmacy Sarah mentions and bought generic versions of the drugs as well as the named drugs and have found the generic to be as effective as the named drugs.   Also if you have got a prescription it might be worth checking out this UK based pharmacy and ring them up to get a quote for the generic version of the drugs.   It is worth asking them if their first quote is the best they can do.   For example my first quote for 112 doxycycline was £64.   After some prompting it came down to £15.   Only slightly more than you would have to pay if you got an NHS prescription and took it to the local chemist.

Azithromycin is best bought online for best value, it seems quite expensive but as you only have to take three a week it does not work out to bad.   Metronidazole is quite cheap from the online drug store. 

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

OK Teteris, the thing about clouds and birds circling...

When it's a hot and muggy day, the most welcoming sight are clouds. They bring reprieve from the heat and scorching sun.

The circling birds - Birds circle often before they land as they are scoping out the safest place. They check the place out for predators and for dangers then they swoop down to safety.

So one can look at clouds and circling birds in different ways. Not to take away from your suffering along the climb, just with every negative, there is a flip side.

 Keep your chin up.

Lived with MS since 1991. Completed 16 months of full CAP plus supplements. Currently in full remission. Not on any antiobiotics anymore but taking all supplements incl NAC.

Mood and Character has improved for me with CAP, but my wife and I believe there may be a slight element of' hope' lifting the spirit to.

Contrary to popular belief 'et al' there WILL be more life.

Sarcoidosis 10yrs. before dx.SPMS-2003 that's it. Research - Don't Believe Them.

CAP 16/04/2008-05/10/09 -  Now Daily: 10kIU D3, Vit.C 1g, Calcium, Ginkgo Biloba, Pro-biotic yog, L-Arginine 1gx6, Magnesium Glycinate 220mgx6.

Depends on what birds are circling!  Also we have had scarcely nothing but clouds since the start of July......................Sarah

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Yes, Sarah's link works well here in US too.  Whatever you may need they seem to provide at reasonable value.  Last order arrived in 7 days from shipping date, fastest yet, and postage paid too.
  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Eriks,

watch out for those circling birds......remember, don't look up with your mouth open & praise God, cows don't fly.  They might be looking for a safe place to land on---- yOU!

onward & upward

I am sending a PM

 

peace

r

 

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<