Antibiotics and Herxing
I have been using antibiotics off and on for about 3 years to treat mycoplasma and unknowingly Lyme. I have been tested for Cpni by PCRi, and came up negative, but I guess that doesn't mean that I don't have it. Symptoms match, but they also match the other stealthy stuff I have. My family is very sick and my mother has a diagnosis of MS and likely Lyme so knowing this info is no doubt relavent in my life. Cpn fits her very much. She has asthmai and numerous lung infectionsi every year.
I have been sick for a minimum of 25 years and my bacterial loadi is no doubt very high. I was one of those who actually looked deathly ill. Very skinny, hair falling out, grey in color, I was wasting away. I had pain from head to toe and the fatigue was crushing.
I was started on 200 mgs. of Doxyi a day. Nothing happened until day 8 when I became as weak as a kitten. My heart rate went to 140 resting and my BP dropped to the floor and was unreadable on my home cuff. I had been previously diagnosed with VTach and my cardiologist sent me immediately to the ER, and to go by ambulance if I couldn't get a ride.
I was checked out and all looked normal other then lowered potassium. I was sent home and deicded to not take any more of the ABXi, just in case it had been that. I had read about herxing prior to starting the ABXi, but it didn't dawn on me for a few days that what had happened was indeed a herx. Needless to saw I am rather afraid of taking the larger doses of ABX since then.
I did some research and found the Road Back Foundation where I learned about pulsing ABX and contolling the herx by reducing the dosing. I fiddled around with the ABX at various doses and found that to start I could tolerate nearly nothing.
My doctor swithced me to Minocycline as it seems to be tolerated better and I now know that I will herx on as little as 2 1/2 mgs of Mino. It seems to accumulate in my system and by about day 8 again I will be herxing. The joints of my feet and ankles swell, and I become achey and fatigued, with alot of brain fog.
Since my first experinece with herxing I have become very leary of max doses of ABX. I herx on everything meant to target this stuff including Diflucan which may also kill Lyme. Tried Cipro and got vertigo so bad, it felt as if I was going to spin of the face of the earth. I had to crawl for help.
So I am wondering what you guys might suggest or should I keep up what I have been doing? Considering the fact that because of the herxing I have actually used minimal ABX, I have managed to achieve about a 95% remission and I look healthy. I know I am still full of pathogens because I still herx whenever I touch anything. I still have problems with brain fog, tinnitusi is still there and eyes are puffy and dry. And I guess most important is that my heart is still irritable and I was recently put on a beta blocker to slow my heart rate down.
My mom and daughter are starting ABX very soon, and I am a bit concerned up my mom 's reaction to ABX in light of my own reaction. She is on Avonex now, so I don't know if that might possible prevent the herx from being so severe.
Your thoughts would be very much appreciated.