Antibiotic Protocol - Rheumatologist Annual Meeting
The Road Back Foundation is exhibiting again at the American College of Rheumatology's annual meeting in November in Boston. After the meeting, on Sunday, November 11th from 9:00 am to 2:00 pm, a number of Road Back volunteers will be gathering to brain storm about the work of the Foundation. If you are interested in participating (i.e., have some skill and time to contribute to the Foundation), there are two spots open. If interested, please send a brief bio and your experience with AP treatment/the Foundation to firstname.lastname@example.org
On this site, educational information and support for using antibiotic therapy when treating:
rheumatoid arthritis, scleroderma, lupus, juvenile rheumatoid arthritis, dermatomyositis, fibromyalgia, psoriatic arthritis, ankylosing spondylitis, Reiter's syndrome, Lyme disease and other rheumatic conditions. Click the RBF bulletin board (see icon/link below) for peer to peer support.
Thought I would ask any folks here about their experiences dealing with Rheumatologists regarding their FMS/CFS? Could be another specialty MD that could be open to the Stratton/Weldon Protocols here in the USA.
This may be opening another can of worms of a discussion but I will do it. I do need to say that I first heard of a Professional Friend whose husband was making a great come back from Systemic Lupus on Doxycycline about 4 years or so ago. So once I was screened for C.Pn., had a Doxy script written and began to investigate the pathogen well I found myself here, Thank God!
And I am wondering if some of these folks would be well advised to consider the possibility that C.Pn. or similar pathogens are potentially part of their presentation and the reinfective element of EB's needing to be considered in their treatment plans.
I find it likely, that Jim K and other ME/CFS/Fibro folks here have investigated this organization. So I ask if that is true? And what your perspective is regarding my thoughts.
I am in the corner of the world where this organization is based, I have qualified for a Fibro etc Dx and I am on an AP soon to be progressing to full Wheldon Protocol Variation.
If I had more available energy I might consider attending and meeting with these folks. It would be good to get an unofficial list of Rhumatologist that are open minded in this corner of the world for all the folks that need CAP. Folks from this state often travel 300 to 500 miles for MD's to treat their systemic intracellular bacterial infections (SIBIs). I am starting with a non-reembursable provider next week. I am fortunate to have that option personally.
OK. My question is not really well formed but......
I so want to tell folks about this protocol;
however to say to them that I don't have any suggestions regarding providers that I think might be open to these protocols and qualify as insurance reemburseable feels very difficult. Fibro and ME/CFS is not as "threatening an illness presentation" ( that is unless it is your presentation!)
Thanks for reading this post.