Anger
I am very early on in my treatment protocol, about 8 weeks of Doxyi 200 mg. I had a very bad response to just one 500 mg NACi and since then many of my old symptoms have returned.
One of the worst is that I keep getting really angry about everything. It seems that the slightest thing sets me off. It has been causing me dizziness and migraine which is very unpleasant. I really don't feel terribly in control and it doesn't really feel like me.
Is this a common reaction to treatment or perhaps something else is going on?
Thanks
Bertie
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
It might be that you have porphyriai (secondary, especially since you are 8 weeks into treatment -- if you haven't been clearing the toxins enough... sometimes we never really know until this stuff creeps up on us :)
... I, personally, do not believe it is the thyroid med and probably would NOT lower it (if that is what you were referencing).
Try Emergen-C drink or several grams of Vit C.... eat some smarties, try chorella or the appropriate amount of charcoal as listed in the recommended supplementsi chart.
Your symptoms definitely could be die-off related.
JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni
Thanks for your reply I will try lots more Vitamin C, I have to travel quite a long way today because I am going to the Breakspear hospital for hopefully some treatment tomorrow so cannot buy any charcoal etc until Tuesday. (I am not driving).
This has only happened since the Doxyi and I remember before when I took it it messed up my thyroid which then messes up my adrenals and I feel very bad.
Today left off the tiny bit of T4 I take and also didn't take the 1 grain so it was just the 12.5 mcg T3. I am much calmer but still experienced a raised pulse after the T3 and needed low dose betablocker to get it under control and feel a bit better. At least with T3 it only stays in the body for a short time so its easy to see what is happening. I will see how I feel after travelling as to whether I need a tiny bit more and monitor how I feel as the week goes on regarding the T4 and 1 grain.
When I had a blood test for my thyroid during March before starting the Doxy I was at the top of the range for T3 so it is highly possible it has just gone over.
Thanks for your thoughts it does help.
Bertie
For me it was porphyriai. Like PMS on steroids. And I was emotionally fragile as well.
When I say "long suffering husband"--now there is a man who suffered! lol
Went away when porphyria went way.
A good thing that you were able to identify it.
"A problem defined is a problem half solved".
Katherine
How can a drug cause anger? From what I know anger is an emotion that we use to protect ourselves not something that comes from nowhere and the capacity for anger is part of our geneticsi is just like joy and sadness is
My guess in this is that flagyli in someway makes it possible to access anger that is already there (stored rage)
If that is not true then could flagyl in some way trigger the brain to feel this emotion like an electric pulse can cause you to feel this or that emotion because the capacity in ingrained in the brains circutry
I have a friend and she says when she takes chlorella which she believes releases mercury she gets over the top anger/rage which is different from her normal anger which is a result of her neglecful childhood
DAILY: NACi 2400MG , DHEAi sublingual , CoQ10 200 mg, vit D3 2,000 IU, multi vits, Folapro, Doxyi 200 mg. 2 or 3 PER WEEK Astaxanthin, Azithromycin 250 mg,B12, Coffee retension enema, Flagyli 6 day pulse, Thyme Thujanol twice a week
How can a drug cause obsessive-compulsive behavior? It occurred almost instantly, when I took steroids for optic neuritis. How can it cause compulsive eating behaviors? The doctor warned me, 'with steroids, you'll want to eat everything in sight, including cardboard'.
All drugs affect the body's delicate chemistry. Some reactions are benign, some are overt, some are physical and some are emotional. If a drug can calm a schizophrenic and let them lead a normal life, then why can't another drug cause anger issues?
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
All drugs have an effect on our sensitive body chemistry. Some effects are physical, some emotional and some do both.
If a drug can calm a schizophrenic and help them lead a normal life, why can't a drug cause anger and depression issues?
When I took steroids for the optic neuritis, I became obsessive-compulsive in very short order. My friends will tell you I do not normally clean closets at 4 a.m, nor do I turn all the food labels to front and alphabetize them. One little pill caused that. (It was a fortuitous effect, since my loft was for sale at the time and the place looked like a page from Architectural Digest while I was medicated.)
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Right I get that Mac but that does not answer my question
Maybe the site is angry at you
Ha kidding
DAILY: NACi 2400MG , DHEAi sublingual , CoQ10 200 mg, vit D3 2,000 IU, multi vits, Folapro, Doxyi 200 mg. 2 or 3 PER WEEK Astaxanthin, Azithromycin 250 mg,B12, Coffee retension enema, Flagyli 6 day pulse, Thyme Thujanol twice a week
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Quick update. Thankfully the anger has subsided, just a bit of it this morning when things weren't going right on my laptop!
Have cut out the 1 grain of Armour otherwise usual dose of T3 and thyroxine. I have found I cannot cut down the meds anymore otherwise I cannot do anything because of nil energy and terrible pain in my body. Also couldn't keep my blood sugar stable so won't be stopping it again even for one day.
I have a feeling that it could well be to do with the protocol but supplementsi like methylcobalamin 5000 mcg might be stirring it up and/or carnitine fumerate. Both help to give energy to the body and brain but maybe its a problem on this protocol?
B12 is fine - in fact, often recommended - in conjunction with this protocol. Carnitine should be fine, too, though it might be helping to feed the active forms of Cpni and making them more susceptible to the antiobiotics.
It's crazy how we all seem to react a little differently. You can join the "feeling crappy but happy" club now!
Started CAPi for Cpni on 11/14/10 -Doxyi, NACi, Azith, Flagyli, T3, Ursidiol, St Johns Wort, B-complex, B12, Folic Acidi, Vit C, Vit D3 (12,000/day), Vit E, Astragalus, Chlorella, Lauricidin, Creatine, Alpha Lipoic Acidi, Ascorbyl Palmitate, Liposomal Vit C
Hi Bertie,
Re your blood sugar. Would a food state form of Chromium such as Higher Nature's True Food Chromium be worth trying? It's sorted out my hypoglycaemia. I'm on T3 @ 30mcg as well as T4. None of my local GPs would sanction Armour.
Anger out of the blue affects many of us here. Now that I'm slowly improving it happens much less often to me.
All the best, Clare
DAILY: NACi 2400MG , DHEAi sublingual , CoQ10 200 mg, vit D3 2,000 IU, multi vits, Folapro, Doxyi 200 mg. 2 or 3 PER WEEK Astaxanthin, Azithromycin 250 mg,B12, Coffee retension enema, Flagyli 6 day pulse, Thyme Thujanol twice a week
Thanks Clare, I don't really find that Chromium makes any difference. I have now taken 3 Azithromycin this week and every day that I take it I notice the hypoglycemia is much worse. On the 2nd day I am a lot better.
I have had to go back to taking 1 grain Nature-Thyroid (similar to Armour) because my weight has been going up plus having to keep eating to keep blood sugar feeling ok. I seem to have felt better since taking it again but still the tendancy to low blood sugar in the morning of taking the Azith. Still taking 12.5 mcg x 2 T3 and 25 mcg T4 plus low dose steroids for my adrenals that don't function.
Thankfully the anger is still well under control and I seem to be perceiving things that are going on around me in a much sharper way so that has to be good.
Glad to hear you are slowly improving, how long have you been on the protocol?
Bertie
It's good that some things are more in balance. What a shame that chromium doesn't work for you. The only type that's been effective for me is food state. My adrenals were low functioning but not totally shot. Until I started noticably improving, hypoglycaemia was much more of a problem. Now that I don't have to keep topping up on more food than I wanted I'm finding it possible to loose weight, albeit very slowly.
I started the full protocol over a year ago, but have been having treatment since 2006, starting off with herbal tinctures in the first 2 years then moving on to abxi. It's had to be very gradual so as not to have Herx reactions.
Slightly off topic, I had to stop cycling 3 years ago because of a very stiff crunchy neck. I've been taking 3 capsules of fish oil plus glucosamine with condroitin. Now my neck is loose enough & sometimes energy sufficient to be able to cycle safely again. This is very encouraging as it's one of my favourite activities....after being stuck at home & getting steadily worse for so many years it's such a sense of freedom & achievement!
All the best, Clare
3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan In for the duration.
The idea of something taking years really angers me #$%^%##$
But I'm glad at least I know what I have and what to do about it so far
DAILY: NACi 2400MG , DHEAi sublingual , CoQ10 200 mg, vit D3 2,000 IU, multi vits, Folapro, Doxyi 200 mg. 2 or 3 PER WEEK Astaxanthin, Azithromycin 250 mg,B12, Coffee retension enema, Flagyli 6 day pulse, Thyme Thujanol twice a week
CAPi for M.S. 8/2007 - 3/2009. Twentieth pulse metronidazole + INHi completed 3/12/2009. Intermittent treatment thereafter until 11/20/2009.
I have had bouts of anger back, almost rage fleetingly and its my first pulse of Metroi. Haven't had this for sometime it had completely disappeared but the last few days have felt massive anger when things don't go right. Its day 4 of Metro.
I find this very interesting but hope it goes away soon because it just isn't my normal character. Think I will only be taking no more than 5 days of Metro!