MediTest
27 Apr 2018
Author
Janice C
Title

allergic to many antibiotics

Body

I am allergic to many antibiotics, but I can take Flagyl. Is there a protocol for this?

Comments

Janice, how do you know which antibiotics you are allergic to?  Very few people are allergic to doxycycline, for instance.  Flagyl is not suitable for CPn by itself, since it needs the pathogen to be forced into the right stage of its life cycle before it can be killed by flagyl, as you can see here:

http://herkules.oulu.fi/isbn9514269853/html/x467.html

You need to ascertain what you are allergic to.  If it is just the penicillins, there will be no problem, apart from getting someone to write the prescription......Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

 

Janice- Sarah may be referring to the question of whether what you are calling "allergic" to antibiotics is actually more an endotoxin or "herx" reaction. Killing Cpn causes a lot of reactions in the body (see the Treatment page for Reactions to Treatment link) which are not at all allergic reactions (hives, histamine reactions, itching, etc), but can be quite unpleasant.Some people have confused this unpleasant reaction to antibiotics as an allergic response. It is rare that people are allergic to all antibiotics, usually it is one or two classes of antibiotics they have true allergic reactions to, and others which can be tolerated. 

Cpn cannot be treated with any single agent because of it's multiple life phases: one agent will effect only one of those phases, leaving Cpn in other phases to replicate and continue the infection. The information on this site will explain that in detail, but may take a little time to digest. 

 

On Wheldon/Stratton protocol for Cpn in CFS/FMS since December 2004.

I have a friend (who doesnt have ms or cfs etc) who told me there are three "strains" of antibiotics, and he is alergic to two of the "strains". He wears a necklace stating such so that no one gives him these if he is not concious for any reason. I just realised what sort of a pickle he would be in if he did have MS.

I had an anaphylactic reaction to penicillin. 

The last time I took tetracycline my tongue swelled up. Is that allergy?

I am currently herxing from grapefuit seed extract. 

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Anaphylaxis is definitely allergic. Penicillin more commonly causes allergic reactions than other abx's. It's not especially effective against Cpn, except in penicilamine form against EB's, but NAC, an amino acid and vitamin supplement can be used for this instead. Tongue swelling could be allergic, you'd have to ask your doctor, and could suggest that the cyclines are also a sensitive abx line for you. Some people report places with Cpn infection concentrations swell up on treatment.

I've used grapefruit seed extract myself in the past for candida, it may have some local effect on gut Cpn since it is a broad spectrum antimicrobial, but has no effect systemically as far as I know, so is likely useless for anything outside the gut. 

One of the Cpn protocols uses INH, very different in form from other antibiotic agents and so usually not cross-reactive with other antibiotic allergies. It is, however, more potent against Cpn than others and you have to go slowly with it dose wise, and have monthly liver monitoring as some people have liver toxicity (see Dr. Powell's comments in the Expert link page).  This protocol is INH, NAC and Flagyl pulses. NAC is probably considered that safest thing to start with, and you should scan this site to get an idea of the kinds of reactions people with Cpn typically get to it so you can help interpret your responses and sort out allergy from endotoxin reactions.

On Wheldon/Stratton protocol for Cpn in CFS/FMS since December 2004.

I looked around the site for INH and didn't find what it is. I have ordered NAC.  The link to Dr Powell is inactive.

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Mackintosh was not sure if she was not allergic to macrolides (erythromycin family). She went to a allergologist and was tested for it.You can do the same. Barbara.

Cured of multiple sclerosis, stopped the Wheldon's protocol in Nov,2008. Use only LDN.

Also, since my husband is also likely now a carrier, what protocol would he need so we don't keep reinfecting ourselves?

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Janice- That's a good question. Clearly, with the complexity of what you are dealing with, you need an experienced Cpn doctor to be treating you and looking at all this. It's worth traveling to find someone who knows what they are doing with this. If you are in the US, Dr. Stratton at Vanderbilt, or Dr. Siram if you  hve MS, and on the West Coast, Dr. Powell in Sacremento. In England, Dr. Wheldon is your man. You need more than a website to be monitoring your case.

On Wheldon/Stratton protocol for Cpn in CFS/FMS since December 2004.

INH is isoniazid. Its main use is to treat tuberculosis, along with other drugs.  You shouldn't take it except under the guidance of a physician because it needs constant monitoring because it can cause severe or even fatal liver damage.  It is much more dangerous than the relatively harmless doxycycline and azithromycin.  You need to have yourself checked for allergies first, then hopefully you will be able to take these two, with pulsed flagyl or tinidazole. Best of all would be to see someone like Mike Powell, whose link is just above!  If your husband is asymptomatic it might be enough for him just to take NAC.  There is no point in taking antibiotics unnecessarily.......Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Perhaps my tongue swelled not from allergy to tetroacycline, but from CPn. For years I've had trouble swallowing. I am learning a lot on the website. Thanks everyone.

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

I wasn't allergic to all those antibiotics after all. I got a rash from die off every time I took them the past many years. I still think I am allergic to penicillin.

I had a problem with swallowing and talking because my throat constricted. That improved after the first two days on a proper three antibiotic protocol.

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

lee

I was 25 when I got pneumonia the first time. After that I developed ibs. I held like that for years until a car accident things fell apart. Before 25 my then boyfriend now husband shared strep for 2 years. I could not wait to get abx for the strep I would get no reaction except to start feeling better. Then a year later after the (pnuemonia)I  became allergic to penicillian. Every antibiotic I took gave me a reaction except zithromax.Someone once told me that a true allergy happens on the first day 90% of the time. I became allergic or so I thought to every abx I took. Same issues swallowing problems. Some rashy experiences too. My opinion is that if they happen on the 345 days they a herx reactions. Sarah is right get tested by an allergist to be sure.

200mg doxy daily, 500 zithromax mwf,flagyl 1000 m-fri.rifampin 2x daily,chloestryramine 2x daily