All - at least mostly - in my head
Unexpectedly, in my 55th pulse, I got - as Jim K colorfully calls it - slammed.
Last Monday I returned home from an exciting week of over 6000 miles air travel and a wonderful visit in Palm Springs to see my daughter open her beautiful new veterinary clinic. I met some of her clients and patients and told many of them of our own ground-breaking site with its adventures. There is NO litter in Palm Springs. My home-coming was very different from those in the past in that I did not need "recovery days" after landing and then driving 170 miles home after a 15 hour all-day two flight day from coast to coast. Amazing. Not only is there "one is never so blind as one who will not see", but there is never one as grateful as one who has been to hell and back.
A few days after my adventure, I began my flagyli which has been put off for months because of the Dairy Goat Nationals, a couple of other shows, the State Fair show, my trip to CA, my first artificial insemination (4 of them) in 25 years, and barn cleaning. All those things are done - and I remember them. It has been noted many times here that we never know what is coming. This pulse has gone to my head. Before I knew I had MSi, one of my symptoms was the ceiling "flowing" from left to right. In the last few years, that has stopped - today it is back in full force, taking the whole world with it, revolving endlessly. Richard escorted me into the house and put me here on the couch with my book and sone carbohydrates (whole-grain toast and orange juice) because I had to sit frequently because of the spinning of my world.
My sister at age 69 has just had a diagnosis of "possible or probable MS" - don't remember which. This makes 5 of 5 with cpni-related diseasesi. After emailing me with the news, she said "Thanks for not being pushy. I will decide what to do".
One of the benefits of recovering from this rotten disease is that we can decide for ourselves whether or not to use/abuse our strength. Last month I walked the 400 feet to our front gate to loosen the tension on our electric drive-through gate and injured my thumb over-using the wrenchs. It has hurt increasingly for weeks, so I went to see about it and got a steroid shot at the base of my left thumb. Ouch. I am left handed.
We are all accustomed to some level of pain, and in our case it is usually a barometer of sorts in our recovery. This has been and is a great adventure and every day that we wake up breathing is a victory in the face of our would-be defeat. The roller-coaster ride comes to a halt, albeit slowly.
Rather than a possibly redundant new blog, I am adding to this a few days later. However, it may be redundant anyway, since I am very definitely feeling flagyllized - I attacked a barn wall with a whisk broom last night and am again in the house during morning chores because of a gentle revolving of my world both ways at the same time.
I haven't checked the dates, but this is my first really serious pulse since re-adding Rifampin to my regimen in August. At this moment, I have a piece of advice for those of us who think we are almost done - be certain to do Rifampin before you get too cocky. If this pulse follows my previous history, in about six weeks I should feell clear of mind and light of foot. Now I feel neither, BUT - compared to four years ago, it is NOTHING.
While I am here, I will mention that this afternoon I have a regular appointment with my doctor. I will, for the first time, be on Day Four of flagyl when I go. I am somewhat weird and staggery. I'm not sure if this is reward or punishment for him. I have always tried to be on, if not best, at least good, behavior. I will also "turn in" our second survey of the "Questionnaire for MS Patients" Thanks to all who updated - anybody who didn't and wants to, we have a few hours. After lookinhg over the latest Lyme treatment decision posted on our site today, by people who have not one clue of the subject at hand, I have an even more heroic opinion of my doctor who is trying to help our cause. Therefore, I will be approaching Jim for a collaborative effort on CFSi, fibromyalgiai, and the other vague-in-my-mind diseases, to put together another survey for him.
The comments about the first part of my blog deserve comments in themselves, but I am strange, so my comments are distorted if well-meaning, and from memory: Michele, thank you for remembering that my vertigo is an old, recurrent symptom.
Ruth, I do, indeed, keep my thumb in it's own little splint consisting of a flat piece of inflexible plastic and some duct tape (what would this world be without it?). I remove it at night - it is getting better.
Daisy, it is the Rifampin!
Hope I haven't bored anyone too much - if I have, just read something else!