After a year of pulsing

Submitted by Homina on Wed, 2012-05-23 20:05

Hello All


After a year of pulsing here is how I have been doing


i have been able to increase my work load from three days a week to four (with great effort)

I don't have as much of a Ravenous appetite after a period of strenous activity as I did before (But I still do)

I am not as sensitive to higher elevations  as I was before( but I still am)

I have been able to add swimming into my exercise routine once a week in addition to yoga once a week and weights twice a week (but all this is my absolute max)

Sleep is improved. Most nights I can get to sleep (but sleep is still Nonrestoritive) I am tired most of the time


I still have symptoms that lead me to suspect I have other problems such as heavy metal posioning  lyme and coinfections

I also think I am sensitive to Electro magnetic Radiation and pollution because when I am in an area with cleaner air and less EMR I feel so much better

I am thinking of getting a Sauna and adding some Lyme and Lyme Coinfections herbs to my protocol




This disease is like being in prison because once I do my work and exercise and whatever is necessary for life .. I am in bed resting I have no energy for a social life at all


My Goals are to work five nights a week exercise 3 days a week be able to go out and meet new people or hangout with friends twice a week and spend time in charity work

I am a long way off from that now

One of my most frustrating challenges is pacing

Some of these crashes are because I have to work some is because I do it to myself

I desperately want to have a normal life so I try to do what others do and I crash and spend days in bed 









You have come far.  And you still have far to go.  Yes, this is like a prison in some ways, but, though it is very slow, according to the ones who flatly disbelieve that we are fighting a bug, we will never really get better.  If you have improved that much in a fairly short time, keep working at it.  But please remember that your body is doing heroic work - let it do its job.  Sleep and good food go very far.  It is on your side and trying hard.


3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

I have talked about this before and will again.   All the fatigue etc that I had and I had mega, began to lift with the use of Cholystyramine and ChitosanHD as binders for the fatty toxins and porphorins that result from this treatment for a number of us, particularly CFS type presentations but also for some MS dx CAPers as well.

I don't recall where you are at with mopping.   I could not take enough charcoal to make a difference with that mopper and as I said I had lots of toxic fatty substances on board during my early treatment.

The other thing that has made a difference for me is methylation support, Sam-e, 5 methyl tetra hyra folate, Phosphotidyl serine complex, TMG, see the topics under booksmarks regarding methylation.

That you are doing what you are doing is great in my opinion. 


  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support