After 3 months
I have been on intermittent since the early May. I had 3 a two-week-courses of abxi. Immediately after stopping in early May I got extreme weakness into my legs which I killed by exercising. It was for the first time since I started abxi that I could do some exercising and it helped. Then I got extreme pain in my back, lower back, hips and legs. As I had still a bacteria in the gyn area I persuated my doc to prescribe me amoksiklav. She couldn't believe that the pain might be from the bacteria but I told her nobody knew what the pain was from and then the only way was to test it by taking abx. After starting the amoxi the pain was away within 3 days and also my walking improved. Then everything went not bad and I was improwing slowly. I can walk more, work more. Only 2 weeks ago I was bad and I was afraid it was the heart issue so I called the ambulance. But everything with my heart was ok and I was said it was from the backbone.
2 weeks ago I saw my neuroi. The first sentence in the report - she is saying she is better but she doesn't look to be much better. I think this sentence is saying about my improvement because as I know my neuro she would write - but she doesn't look to be better at all. I could lift both bent legs -one at a time and then together. She liked it and was satisfied. Also in the report it's written - Babinski on the right. At the beginning of my MSi I had Babinski on the right then after maybe 15-20 years I had it on the both sides -right and left and now just in the right.
During these 3 months I was away from my home as the bathroom was beeing reconstructed. I am having a new hydromassage tub. I am looking forward to soaking in it and having a massage. I hope it should be this week.
I have been at home since last Friday. Till Wednesday I cleeaned almost all the flat. When I came home I almost cried. Everything was covered in dust but it was the dust from the reconstruction. I cleaned the flat for 5 days and I could still work and walk though not much but I could. I washed the floor several times, furniture, cupboards... I also did a lot of washing till my washer stopped working and I had to call the service what was the problem because of the holiday time. I started to be tired on the sixth day and since the I have been working less. I did and do all the cleaning alone as my son went on the planned holiday, my daughter was travelling abroad, my husband was tired from the reconstruction and I don't like having a foreigner to clean my flat. The most important is I was strong enough to do everything. I can't imagine to do this before the abx treatment. 3 years ago we changed the windows and my husband and son cleaned all tha flat an I came home only after everything was clean. Now also they would clean the flat but I would come home only in a few weeks later but I wanted to come home so I had to clean and I COULD!
I'd say while I am on intermittent I am improving more but I have also reactions to abx and this may show me how long should I be on intermittent. I also started to have more problems with candida and because of the candida it's good I am on intermittent. The candida isn't the issue as the result of abx. I had it also in my young years and surely also later but then my sensation was bad so I didn't realise I had had the candida. Also the candida might be the problem with my hips. I started to have candida diet and my hips improved. When I had chocolate my hips got much worse and I almost stopped walking. I tested this twice - candida diet and chocolate and the results were the same.
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Evita, I think your
Evita, I think your experience shows without a doubt that someone doesn’t have to be on full time antibioticsi for ever and ever. I look forward to more of your posts whilst on intermittent and I hope that you enjoy your new massage tub when it is up and working properly.
Neurologists are always reluctant to report on what they see in front of their eyes: you looked more than well in that photo you sent me. Someone with MSi of twenty years standing, the last few progressive, should not look like that..........Sarah
A Journey through Light and Shadow
Sarah I must correct you. I
Sarah I must correct you. I have had MSi for more than 30 years not only 20.
It isn't easy to be on intermittent but it's easier than to be on continual abxi. If I can compare intermittent to continual I'd say:
1. I can work more and also walk more. Not 20 meters but 200 meters. It'still with a cane or trecking poles. But at home sometimes I can walk without any support mostly when I forget that I should support myself and then I can walk up to 6 meters.
2. When I work my hips and lower back hurt as it did when on continual but in spite of the pain I can still work more.
3. There are short whiles when my hips and lower back are free of the pain mostly in the mornings after I get up or after having a rest. Anyway sometimes when I sit to have a rest something makes me stand up and work and then the pain is weaker when standing than while sitting. I can't understand it.
4. The reactions in all the parts of the body are more or less the same - burning or hives in legs, pressure in head, dizzziness, the pain I mentioned. They take short - just half a day and the next day the parts where the reaction was are better than before.
What's for me the most important is the candida gets better during those weeks of abxi off. I think the candida is also bad as it produces also toxins.
It seems to me to be logical to be on the intermittent. When the reactions to the 3 abx stop while on continual I think there are two ways to continue. The first is to add the next abx to dig the cpni out with bigger force. Or to go intermittent. This is my understanding of the way how intermittent works - After stopping the abx cpn can't see any enemy which could kill them so they go out from their deep caves and then when the abx come the abx can surprise cpn and kill them. I can see this in my reactions to the abx. When I start doxyi and roxi the first two days I have the reactions to them and also the first 2-3 days of the pulse. When I was on continual abx I had no reactions to doxy and roxi and very weak one to pulses or almost none. Also the second way is more moderate to body than the first one and also the immunity gets chance to work without abx. And the results might be the same in the both ways.
I think only the time shows if my thinking is correct.
MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi
Of course, thirty years! It
Of course, thirty years! It was me who had the disease for twenty years when I started treatment, although I must have had C pn for rather longer. Your reasoning seems to me to be very sound so let’s see what happens. I have never had a relapse since stopping antibioticsi so i see no reason why you should be different ......................Sarah
A Journey through Light and Shadow