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ABC News Medical Mystery SpotSubmitted by Karl on Thu, 2007-09-13 08:35. Hello all and we send our best. In the past, I posted about a TV special we were interviewed for that was supposed to initially air in January. The spot is ABC News Primetime Medical Mystery titled - Chronic Lyme Disease as it pertains to ALS and MSi.
Delays, delays and delays and it is already fall. My last update from the producer, as of 9/6/07, is the executive producer is waiting for the proper moment and feels summer is a slow season so they are waiting for the new season. The producer, the host and everyone in house loves the special and are anxious to see it air but were hoping for this summer. An air date is checked on weekly and I will be notified as soon as the producer knows. I will then re-post for those who may be interested in hopes to help anyone on any level.
Yes, the spot details Lyme Disease yet we introduced the CPNi information/protocol and discussed this as CPN is the base cause of my MS and then the treatment. (CPN past and present infection, then Lyme and Babesiosis : co-infectious MS.) Hopefully, ABC included it. The CPN protocol is where we started and has always been the base of my treatment. If I didn't use this protocol as the base, I wouldn't be where as healthy as I am today but still dealing with the extreme fight. My simple example is this - I've been out of work due to the MS for almost 1.5 years and I will be getting back to work by the first of the year, still continuing treatment for the required course, but back to leading a normal life.
For further detail, my story is under Patient Stories. (Karl's treatment....) I do intend to update where I left off as soon as possible to complete the story (have to find the time) and will also keep up down the road as I expect my 23+ lesions will tell the final story.
Best wishes and regards to all,
Karl and Alyson
___________________________________________________________ Uncommon inner strength must defy gravity...hanging on here....You all have the ability to do it!Diagnosed MSi 5/4/06. CPNi past and new chronic infectionsii. Lyme suspicious titers and Babesiosis found. Started CAPii 6/1/06. »
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Thanks for the update Karl
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On Wheldon protocol for MSi since April, 2006. doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma
Thank you, Karl. Your
Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 44 pulses NC USA
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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA
Karl - Please do come back
Karl -
Please do come back soon and post your progress. Your story is very similar to my husband's in the rapid onset and virulence. I have probably read your blog at least a dozen or more times. We have even found our way to who I believe was one of your most helpful physicians a couple of weeks ago.
It is so encouraging after 1 1/2 years that you are able to consider returning to work. I am sure I speak for many when I say we would all love to hear more!
Daisy-Caregiver- Balo's Concentric Sclerosis. Began CAPi 5/10/07.
Doxyi 200 mg, Minoi 100 BID 9/1/07, AZI 250mg QD 9/10/07, NACi 1200 mg, HD Flagyli Pulses,Novantrone, Prednisone & daily lb of supplementsi.___________________________________________________________
Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill
Great Karl, keep us
Great Karl, keep us posted!!
Blessings for your continued treatment.
Ruth
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8-21-07 1st pulse 1 X 250 mg Metroi
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 days