I don't know where this post is going, sort of thinking out loud, so please forgive me up-front. Steve is currently in the middle of a 20-day course of Tamiflu for what has developed into a chronic infection with an untypable flu (neither A nor B). In a few days it will be just about time for another flagyl pulse, AND/OR it's just about time to start a 50-day course of fluconazole as an additional Lyme treatment agent. And about that flagyl pulse...Steve's Lyme doc agrees that the pulses should be lengthened and says it takes 2 weeks for flagyl to kill Lyme. However, he thinks that if the pulse is stretched out to 2 weeks, you should go ahead and make it a month-long pulse in order to kill as many of the cystic form as possible. Steve's last pulse was 8 days long, and he handled it well. I've considered making the next one either 11 days or a whole month, but frankly, if he starts the fluconazole, I'm unsure whether or not a pulse should be considered at all until we see what the fallout will be from the new med addition.
To complicate matters, last week he used calcium pyruvate for a few days. The aftermath of the combination of CP with azithromycin for that short time is playing out rather like a type of pulse. What does that tell us about the demographics of Steve's bug population? And what does the mild fallout of Steve's last pulse tell us? Cpn RB vs. cryptic and/or Lyme spirochetal vs. cystic? Which freakin' bugs are telling us whatever they're telling us? This feels like trying to play chess and backgammon at the same time.
Last week Dr. X more or less told us he would do whatever we wanted (within reason). That's quite an arrow to have in your quiver, but the gravity of the responsibility is even scarier than fighting to get every scrap you can get.
Further complication: Steve will walk our oldest daughter down the aisle in mid-July in Worcester, MA. After the wedding, we'll go to Schenectady, NY for a few days, and that will be the first time he will have seen his parents in 2-1/2 years. Whichever treatment route he follows, one, the other, or both, he needs to be past the cycle and in decent form by then (as though that actually would be controllable). There's no way the next treatment leg will be put off until after the July trip.
This seems like a logic problem that I should be able to work out, but instead, I'm in a quandary with a very bad case of Busy Head Syndrome.
Joyce~caregiver-advocate in Dallas for Steve J (SPMS). CAP since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity.