A new member
"Pavel,36 old,land surveyor,from Czech republic, Chlamydia Pneumoniae and lyme desease,from 1999,joints problem from 2001,worse and worse,2006 prove of smooth muscles autoimunity,probably seronegative spondylarthropatie,positive antigens HLA B 27 and HLA B 7, I would like start treatment by using combination of different antibioticsii,I would like to move to UK in autumn,in the Czech republic it's dificult to use above mentioned treatment..."
Yes, it is very hard work. But I think in the UK it won't be more effortless. Only with EHIC - a European Health Insurance Card it is not available. May be, there is any other possibility, I don't know.
Jan
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Welcome, Pavel
We are a stubborn bunch here, and the old saying "Where there is a will, there is a way" applies to us. We are a very large cheering section. Somehow.....
Rica EDSSi 6.7 at beginning - now 2
Ignorance is voluntary bad luck. Lauritz S. A true Viking
If you come to a fork in the road, take it. Yogi Berra
3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan In for the duration.
Welcome Pavel. We hope that this website will be a support to you growing healthy!
Combined Antibiotic Protocol for Chlamydia pneumonia in Chronic Fatigue Syndromei & Fibromyalgiai- Currently: 150mg INHi, Doxycycline/Zithromycin, Tinidazole pulses. Northern Ohio, USA
CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral
Hi Pavel,
There are a couple of your compatriots following the CAPi, I's sure they will be able to give you advice about the treatment and whether you can get it in your country. They will be in touch I'm sure.
David Wheldoni would give you a consultation in this country, but the treatment with not be available on the EHIC (E111 in the UK). I understand that it is difficult for you in the Czech republic to order drugs on the internet, but that would be an advantage to moving to the UK, ordering the drugs online makes it cheaper (a bit). But it is difficult to get the treatment here too. I have tried several doctors and microbiologists without success. So we travel to meet and correspond with David who has given us great support, as has this community...
Its not easy following this treatment but it gives us hope and the people here will give you great encouragement.
Best wishes
Michele: on Wheldon protocol since 1st May 2006 for a variety of long standing ailments, also spokesperson for Ella started Wheldon protocol 17th March 2006 for RRMSi
Sussex, UK
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.
Thanks for nice wellcoming, it is an honour to be to part of such as great stubborn bunch. I am sory for my not so good english, what does it mean EDSSi ? I hope we will keep in touch and win!
Pavel
Hello Pavel
EDSSi is the scale that some neurologists use to put a number on the disability of MSi patients. I was told last year after pressing my since ex-doctor that I was "at least" 6.7. As I remember 1 is normal and 10 is dead and maybe 8 is wheelchair. I was on a walker.
Rica EDSS 6.7 at beginning - now 2
Ignorance is voluntary bad luck. Lauritz S. A true Viking
If you come to a fork in the road, take it. Yogi Berra
3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan In for the duration.
Small correction. Zero on the EDSSi is normal, no deficiency.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi