A Handle Resubmitted

Submitted by katman on Thu, 2010-01-14 11:54

On rereading last week's blog, I am amazed at what I wrote about flagyl and not taking it. Sometimes I guess I am not as "with-it" as I believe.

In May, Richard spoke to Dr. S., who put me on the usual: Doxy, 200mg; Azithromycin, 250MWF; Rifampin, 600mg; flagyl, 1000: (these I had been on till I stopped everything on Jan 11, 2009); and then ADDED Amoxicillin 1000. I did this without fail for six months and then we called him again. But I was STILL reacting! Aaarrrgg!! He then left all abx the same, with the exception of flagyl, which he replaced with caffeine pills.

My caffeine adventure began with ONE-HALF a caffeine pill, which I took with my first abx of the day. It was reminiscent of my first day of flagyl five years ago, though not nearly as bad. After about two weeks I took a whole one, with the reaction about like the beginning a few weeks previous. Then a few weeks after that, I took three. All was ok, though my walking was more impaired (more on that soon), except for nausea, which got worse each day, until this week, the second, when I realized I couldn't keep on with three. The nausea had begun by the first afternoon of day one of the second week of three caffeine pills each day. Two days ago - today is my third day - I started with flagyl bid - for a total of 1000mg and one caffeine pill. So far, it is working splendidly.

The most remarkable thing is that I HAVE NOT TASTED the flagyl! I am certainly not letting it melt in my mouth, but I can take it with water - and NO taste - and no major reaction. As a matter of fact, the reaction has not been buiding like a train getting started over three days, though I'm  sure my body will be happy when I stop.  As for my walking, it has slipped significantly since increasing the caffeine and has improved since cutting back and is improved from its worst but then slipped a little again with flagyl.  Tomorrow I will try two caffeine pills and bid flagyl, hoping to avoid the nausea but keep the disability , which I hope will improve while doing the maximum protocol.  That's what this is about - right?

This is all good news, except the nausea from the caffeine, but I think that's ok. We are a work in progress and this is just one more tiny bit of information that may be useful to someone in the future.


Rica, it does seem amazing that caffeine has such an effect combined with the abx, but it certainly does for me! I think I will also add the flagyl to my regime and see if I can move to a point where I have no reaction. Strangely I have never had any taste issues with the flagyl and am not experiencing any nausea, yet.



Wheldon Protocol since July 07. Doxy 200mg July 07, Nac 1200mg July 07, Azi 250mg 3xweek Aug 07, Flagyl pulses Oct 07, diagnosed MS Aug 06. Intermittent Aug 08.