On rereading last week's blog, I am amazed at what I wrote about flagyl and not taking it. Sometimes I guess I am not as "with-it" as I believe.
In May, Richard spoke to Dr. S., who put me on the usual: Doxy, 200mg; Azithromycin, 250MWF; Rifampin, 600mg; flagyl, 1000: (these I had been on till I stopped everything on Jan 11, 2009); and then ADDED Amoxicillin 1000. I did this without fail for six months and then we called him again. But I was STILL reacting! Aaarrrgg!! He then left all abx the same, with the exception of flagyl, which he replaced with caffeine pills.
My caffeine adventure began with ONE-HALF a caffeine pill, which I took with my first abx of the day. It was reminiscent of my first day of flagyl five years ago, though not nearly as bad. After about two weeks I took a whole one, with the reaction about like the beginning a few weeks previous. Then a few weeks after that, I took three. All was ok, though my walking was more impaired (more on that soon), except for nausea, which got worse each day, until this week, the second, when I realized I couldn't keep on with three. The nausea had begun by the first afternoon of day one of the second week of three caffeine pills each day. Two days ago - today is my third day - I started with flagyl bid - for a total of 1000mg and one caffeine pill. So far, it is working splendidly.
The most remarkable thing is that I HAVE NOT TASTED the flagyl! I am certainly not letting it melt in my mouth, but I can take it with water - and NO taste - and no major reaction. As a matter of fact, the reaction has not been buiding like a train getting started over three days, though I'm sure my body will be happy when I stop. As for my walking, it has slipped significantly since increasing the caffeine and has improved since cutting back and is improved from its worst but then slipped a little again with flagyl. Tomorrow I will try two caffeine pills and bid flagyl, hoping to avoid the nausea but keep the disability , which I hope will improve while doing the maximum protocol. That's what this is about - right?
This is all good news, except the nausea from the caffeine, but I think that's ok. We are a work in progress and this is just one more tiny bit of information that may be useful to someone in the future.