Well I've now graduated to the full protocol. It's been six weeks and I can report no really unpleasant effects except depression, which has occurred after the abxi.
I think I've had a reasonable experience so far because I'm trying to take things steadily and increase things gradually. Something I have discovered is that it takes me a week to tolerate each step.
I've been prompted to write this entry because of what to me is a significant step. I have only been taking the abxi for 2 wks and already there has been a decrease in the major spasms in my right leg, my overall pain has decreased and my floppy right foot has stopped flapping like a seal's flipper all the time, it now rolls as I walk, at least until I tire.
However the thing that made me feel really good was the balancing act. I test myself often (I'm sure we all do in various ways) by trying to balance on each foot in turn. Usually I fall staight off the right. The left has not been too bad and I can balance on it normally but this morning I balanced on my right. I'm impressed.
So now it's just keep on keeping on.
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Robert - MSi for 16yrs. CAPii since Jul 07, NACi 2400mg, Doxyii 200mg daily, Azith 250 mg MWF, Flagylii 10th pulse.
Good Job Robert,
Good Job Robert, excellent
The Azith causes or exascerbates depression; you are not alone there. When I see my doc next time I am going to switch over to Roxyi to see if that makes a difference.
My experience so far while being on the CAPi is at one point I was feeling pretty good, pain levels down & I knew I wanted to do my first pulse. The iddy biddy pulse knocked me flat & I turned into the awful Troll Queen with my depression. I am slowly recovering, but as soon as I take an Azith my demeanour changes.
Keep going, blessings
Ruth
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 250 mg M/W/Fday, 8-21-07 1st pulse 1 X 250 mg Metroi
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 daysHow I remember the thrill
Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 44 pulses NC USA
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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA
Congratulations Robert!
Congratulations Robert! Now, you're on your way to standing on one foot and spinning plates in the air.
Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, antivirals, heavy metals chelation, LDNi, Metanx, Lunesta, GF/CF diet, Lauricidin, oral IgGi/lactoferrin/IGF-1 booster, astaxanthin, gamma oryzanol.
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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
Good for you Robert, just
Good for you Robert, just the encouragement you need. As Rica says remember it well, there may be times in the furture when things are tough and you will need that ray of sunshine to encourage you and keep you going. It has happened and it is chronicled here, you did not imagine it...
On the other hand you may be one of the lucky ones who keeps improving effortlessly...
Michele (UK) GFAi: Wheldon CAP1st May 2006 . Daily Doxyi, Azi MWF, Flagyli at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMSi Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006