A delicate balancing act

Submitted by robertd on Sat, 2007-09-01 16:34

Well I've now graduated to the full protocol. It's been six weeks and I can report no really unpleasant effects except depression, which has occurred after the abx.

I think I've had a reasonable experience so far because I'm trying to take things steadily and increase things gradually. Something I have discovered is that it takes me a week to tolerate each step.

I've been prompted to write this entry because of what to me is a significant step. I have only been taking the abx for 2 wks and already there has been a decrease in the major spasms in my right leg, my overall pain has decreased and my floppy right foot has stopped flapping like a seal's flipper all the time, it now rolls as I walk, at least until I tire.

However the thing that made me feel really good was the balancing act. I test myself often (I'm sure we all do in various ways) by trying to balance on each foot in turn. Usually I fall staight off the right. The left has not been too bad and I can balance on it normally but this morning I balanced on my right. I'm impressed.

So now it's just keep on keeping on.

Good Job Robert, excellent

The Azith causes or exascerbates depression; you are not alone there.  When I see my doc next time I am going to switch over to Roxy to see if that makes a difference.

My experience so far while being on the CAP is at one point I was feeling pretty good, pain levels down & I knew I wanted to do my first pulse.  The iddy biddy pulse knocked me flat & I turned into the awful Troll Queen with my depression.  I am slowly recovering, but as soon as I take an Azith my demeanour changes.

Keep going, blessings


CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 250 mg M/W/Fday, 8-21-07 1st pulse 1 X 250 mg Metro

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

How I remember the thrill of doing exactly that! Repeating myself, I say remember this well, because at some point you will probably question whether it really happened. Happy, happy for you!


Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 44 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Congratulations Robert!  Now, you're on your way to standing on one foot and spinning plates in the air.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, antivirals, heavy metals chelation, LDN, Metanx, Lunesta, GF/CF diet, Lauricidin, oral IgG/lactoferrin/IGF-1 booster, astaxanthin, gamma oryzanol.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Good for you Robert, just the encouragement you need.   As Rica says remember it well, there may be times in the furture when things are tough and you will need that ray of sunshine to encourage you and keep you going.   It has happened and it is chronicled here, you did not imagine it...

On the other hand you may be one of the lucky ones who keeps improving effortlessly...

Michele (UK) GFA: Wheldon CAP1st May 2006 . Daily Doxy, Azi MWF, Flagyl at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMS Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.