MediTest
27 Apr 2018
Author
cypriane
Title

A Cyber-Roadtrip to Lift Our Spirits

Body

Travel is fun and exciting, fuel is expensive, we could all use a break, so let's go to Australia and make it up as we go along. Let's start in Perth and have a grand adventure. I've never been there, so I'm hoping someone who has been there will start (or at least someone with a flaming imagination!). And we will all get a good geography lesson on the way. Go ahead....

Comments

Perth, in Western Australia, is the home of Barry Marshall, who, together with  Robin Warren, won the Nobel Prize for  Medicine in 2005 after showing that stomach ulcers were caused by H Pylori: http://www.vianet.net.au/~bjmrshll/.       It is also the home of my first boyfriend after my invisible friend Tim. He emigrated there at the age of eight.  I think his name was Gerald, but I can't really remember.  I just remember his dark, curly hair and his love of science.       Perth is also the start of the Indian Pacific Railway, which finishes in Sydney, 4357 km later, after crossing a vast array of different terrains.......Sarah     An Itinerary in Light and ShadowWheldon regime since August 2003, for very aggressive SPMS.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSS was about 7, now 2. United Kingdom.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Should we try to look him up while we're in town? Perhaps we should make this a rail trip instead since the railway is so convenient. While we're here, I wonder what Perth's particular points of interest are...I'll be looking it up. Where are the Aussies? They could make this especially fun if they would get on board.

Michele and I have shared a cyber-adventure before when we had a girl's day out on the town.  There is room for fantasy along with realism.  I think we should all be young and beautiful, smarter than average, charming and interesting, athletic, energetic, and perfectly healthy on this trip.  Anyone who wants to come along as his or her real self is perfectly welcome.  In our previous adventure, there was a good-looking young Italian waiter who thought Michele and I were really hot stuff---that was fun!

Okay, it's someone else's turn to steer...

Joyce~caregiver-advocate in Dallas for Steve J (SPMS) / Cpn indicated by reactions; Mpn, EBV, CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAP since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation; LDN.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Ok, so as always the practical kind I checked out the weather, drizzly but warm.   Looks like a rather impressive place with an accessible coastline.

Image removed.

Image removed.

And I wonder whether Gerald could now be one of those surfing dudes that seem to populate Australian Beaches.  I wonder what Aussies would call him, Gerry I reckon and although no youngster any longer, the excercise and the adventure make him a pretty interesting guy...

Image removed. 

Michele: Wheldon CAP1st May 2006 for ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy. Spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS. Sussex UK

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

All I know about Perth is the "Perth Wave," which isn't about surfing -- google it as the "Australian Wave;" apparently it's wider-spread than I knew.

Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Currently: doxy & zith -- continous; metronidazole -- 5 days on, 7 days off.

RonOn CAP for CFS starting 01/06 (NE Ohio, USA)Began rifampin trial 1/14/09Currently: on intermittent

Ron,  Is this the wave you mean as presented by westernaustralia.com?

 

Wave Rock

 Image removed.The Wave on Hyden Rock is one of Australia's most famous landforms, situated four kilometres east of the town of Hyden. Rising 15 metres above the ground, and more then 100 metres long, Wave Rock looks a giant surf wave of multicoloured granite about to crash onto the bush below. Wave Rock is four hours drive through the wheatbelt from Perth's northern suburbs via York, or via Brookton when coming from the southern suburbs of Perth. Geologists believe the original formation has been sculptured and coloured by chemicals over 2,700 million years to take on its wave-like character.  

 Let's go....

Joyce~caregiver-advocate in Dallas for Steve J (SPMS) / Cpn indicated by reactions; Mpn, EBV, CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAP since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation; LDN.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Being consummately serious at the moment, how about these, all from Perth, not a Gerry, now 48 or 49, probably greying and thinning on top, in sight:   Asthma and sunlight, therefore vit D  -http://www.medicalnewstoday.com/medicalnews.php?newsid=55158   CPn and koalas again  -  http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=98887&tools=bot   A piece by a director of nutritional healing from Perth, about CFS, fibromyalgia and non viral infections, amongst other things  -  http://www.nutritional-healing.com.au/content/condition.php?condition=CFS/FMS   Finally Path West, a good place for testing while you are out there  -http://www.pathcentre.com.au/about_what.aspLots to keep people going who find the heat of the outback too much, although winter is coming in Australia.  Next stop en route for Sydney and Robin Warren: Adelaide..........Sarah      An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Wheldon regime since August 2003, for very aggressive SPMS.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSS was about 7, now 2. United Kingdom.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah, that's power googling: Perth and CPN and CFS -- any sign of CPU overheating? Good CFS summary link, by the way. Maybe I should stay a while and see what treatments they recommend.

Joyce, the only Perth Wave I'd heard about was to keep flies away -- apparently they're very bothersome at some times of year. Now, the wave rock is amazing -- it seems like there ought to be several of them scattered around the globe, or none at all. Not just one, certainly.

Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Currently: doxy & zith -- continous; metronidazole -- 5 days on, 7 days off.

RonOn CAP for CFS starting 01/06 (NE Ohio, USA)Began rifampin trial 1/14/09Currently: on intermittent

Funnily enough UV light was one of the treatment offered for Alopecia in the 70's. But as you only got an hour a week, it did not work for me.
Re the Koalas, I hope they are not going to do to them what they do to badgers in this country.

Michele: Wheldon CAP1st May 2006 for ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy. Spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS. Sussex UK

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Can we stop off in Alice Springs on the way just to get a taste of what makes Australia Australia... The outback.

Michele: Wheldon CAP1st May 2006 for ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy. Spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS. Sussex UK

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Alice Springs? Turn left at Adelaide, travel  for 25 hours on the Ghan, then several days free to explore the Outback before the next train back, but I found this:http://www.healthinfonet.ecu.edu.au/html/html_resources/theses/hutton.htm - Chlamydia pneumoniae circulating in the indigenous population of the Northern Territories.  You have to wait several days in Adelaide though, for the train up north, so have time to discover something there.  I have, but I'm not telling..........Sarah      An Itinerary in Light and ShadowWheldon regime since August 2003, for very aggressive SPMS.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSS was about 7, now 2. United Kingdom.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I think your cyber roadtrip is a great idea! The last time I visited Perth was when my family drove there from Sydney when I was 16. I had my learner's permit ('L' plates) and after kangaroo-hopping the manual Toyota Tarago van out of a petrol station one evening, my stepfather and the rest of the family slept while I drove through the night across the Nullarbor Plain! It is aptly named and therefore VERY boring, so I don't blame them for sleeping. When my stepfather woke up and glanced across at the speedo I was doing 120km per hour (learner speed limit is 70km I think!) and so I quickly received some instructions about maintaining a steady (and legal!) speed!

Sorry I'm late to join the trip. I will blame the clocks falling back last weekend. When you get to Jervis Bay on the NSW south coast, about 3 hours south of Sydney, please drop in for a cuppa!!

Vanessa :o) 

On Wheldon protocol since July 2006 for SPMS (EDSS=6 to 6.5).

Vanessa :o) On Wheldon protocol since July 2006 for SPMS (EDSS=6 to 6.5).

Image removed.Just so everyone knows where they are going....

Michele: Wheldon CAP1st May 2006 for ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy. Spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS. Sussex UK

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Willow hasn't said anything, but my intuition tells me she would love to take in a gem and mineral show while she's here (or at least visit a good rock shop or two). Lapidarians can't resist picking up rocks. Australia is famous for its opals, but there must be other gems and minerals that are particularly associated with Australia. If we can't find a show or shop, we'll invent one, and remember, Willow, our funds are unlimited.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS) / Cpn indicated by reactions; Mpn, EBV, CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAP since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation; LDN.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Just for Willow, here is a gem gallery. For those of us with less creative bent but who like a pretty face...

Here is a picture of one of the USA most famous exports to Australia. One of the early films that he made was not mentioned in the wikepedia listing, it was called Tim. The story line was of a little like that of Forest Gump...

Michele: Wheldon CAP1st May 2006 for ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy. Spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS. Sussex UK

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Michele,  Thanks for rounding up that info for Willow.  And, yes, who could overlook a gem like Mel.  His head and mouth sometimes get off-kilter, but there's no denying it's a yummy-looking head and mouth.  I've seen that same film---it also reminded me of a novella by Elizabeth Spencer called "The Light in the Piazza" that has been made into a musical.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS) / Cpn indicated by reactions; Mpn, EBV, CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAP since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation; LDN.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

As Adelaide is the wine center of Australia, we are booked for this tour of the region's boutique wineries.  We found this terrific aboriginal art gallery, and some English gals I know went into a spending frenzy in there.  Some of us have a tendency to want to drive on the "wrong" side of the road...but I won't name names?  We have played many CDs already, but we need to focus on Australian music while we're here...aboriginal and non-aborignal alike.  Now, what's the name of that strange sounding wind instrument we hear in aboriginal music?
Image removed.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS) / Cpn indicated by reactions; Mpn, EBV, CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAP since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation;

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Its called a didgeridoo. I once went to a workshop where a great german musician played the digeridoo in the hall, it was such a powerful experience. The vibrations were so strong that it made my chest resonate.

One of my favourite musicians is a New Zealander,  by the name of Neil Finn.   Close...

Well it won't be the Europeans who are driving on the 'wrong' side of the road... 

Michele: Wheldon CAP1st May 2006 for ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy. Spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS. Sussex UK

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Michele,  In this situation, the word "wrong" is completely subjective...that's why I used the quotation marks.  I guess I should have used (< >). 

Joyce~caregiver-advocate in Dallas for Steve J (SPMS) / Cpn indicated by reactions; Mpn, EBV, CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAP since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation; LDN.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

I Knew that... I did...Really...

Michele: Wheldon CAP1st May 2006 for ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy. Spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS. Sussex UK

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.