A Committee of One of Three of Many

Submitted by katman on Fri, 2008-01-11 10:48

Today I am eighty days post twenty-six day flagyl pulse and though I have not been around the world, I feel as though I have climbed my share of mountains. I was going to do another long pulse in January but have postponed it for two reasons: the first reason is that I have noticed, as have many of us, that the longer and more intense the pulse, the longer the recovery. It has been no exception with this extended (for me) one. I find this as a signpost for us - don't feel that "this is not working" if you choose to go outside the boundaries of the written protocol. This applies with the regular protocol, also, especially early on when this foe is lining up its defenses. We are writing in blood the new rules. Flagyl flattens our emotions and our intellects in unscripted ways, but in my own forty months, if my experience is representative, our bodies float to the surface, take a deep breath, and begin another long swim to a sometimes temporarily out-of-reach shore. But even that shore is attainable. Steven Callahan, a remarkable sailor, reached it after seventy-seven days adrift. He is very, very tough - and smart - and patient.

My recovery after this long pulse has led to a delightful month of terrific daily normal life. To help in "rebuilding new pathways" - which can REALLY happen, I began Pilates and am on the second level - "Beginning Mat Work". I think this was invented for us whose numbed, now slowly reconnecting, muscles have turned to mush. It zeroes in on and targets exactly those muscles. I discussed with an MS friend yesterday how often I do this and, thinking about it, realized that I had done it five days out of seven this week, and the week is not over yet. That is probably a little higher than my usual average of closer to three or four times a week. After beginning the very basic tape in November, which I did as often as I could, I have tried to increase the schedule, at the same time keeping up my walking or elliptical, doing one or two of the three every day. This leads me to the second reason for this blog. Next Wednesday I will have a double mastectomy. This will make me at least the third female on this site to have cancer or pre-cancer. I have DCIS (ductal carcinoma in situ) on the left. They will take the lymph nodes to examine in the hope that the malignancy is confined. It will be a double mastectomy because there is a 50% chance of cancer on the other side. This surgeon did my biopsy of a year and a half ago (negative) and has watched my progress with interest. His daughter is a patient of my husband's. I will miss no days of my abx or my supps, though they may not be on my regular schedule.

Rica -

I was happily reading along in your blog entry when towards the end I read the Next Wednesday sentence.  That you have been carrying this weight on top of everything else is - well - my heart goes out to you.  If there is anyone who should be spared this new health issue it's you.  Life is so surreal and hard to understand sometimes. 

I don't know what to say in the way of comfort or support.  I do know that you are one extraordinary and strong human being so I am confident in your ability to work through this difficult situation. 

I am marking my calendar for next Wednesday and will remember you with prayers for clean pathology, extraordinary healing and full recovery.

Rica - You are simply the Best!

Daisy-Caregiver- Balo's Concentric Sclerosis.  CAP 5/10/07.  Mino 100 BID 9-1,  Roxy 300 BID 11-5, Rifampin 600mg QD 10-15, Bactrim DS BID 11-3, Diflucan 100mg BID 11-30, Novantrone, Doxy, Azith

Daisy - Husband on CAP 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MS drugs killed him.

Daisy on her own CAP 11/2012. 

Good luck Rica.

Malcolm

Doxy 200mg since 13 Sep 07 (100mg since 26 July 07), Nac 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MS Aug 06.

Malcolm

Wheldon Protocol since July 07. Doxy 200mg July 07, Nac 1200mg July 07, Azi 250mg 3xweek Aug 07, Flagyl pulses Oct 07, diagnosed MS Aug 06. Intermittent Aug 08.

Rica,  like Daisy, I was happily reading your newest blog entry, when I got called away.  When I returned to finish, I was struck by the last paragraph and straight away burst into tears.  A bit of studying later and I feel slightly more reassured that this isn't as bad as it might be, but even so, you don't deserve this: life can be never-endingly cruel sometimes.   So the very best of luck for next Wednesday.  At least it is only January, so plenty of time to recover before the next show season.  Just leave the kidding to someone else this year.........Sarah   An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Forget that, Sarah! As the saying goes "We should have thought of that before!" But you know it wouldn't have mattered. We have 20+ bred does and hope to make it to Louisville, KY this year to the Nationals. It was held there 25 years ago when we went to our first Nationals. My first question was "How long before I can go back to work?" (Four weeks was the answer - which is too long, but....) After all, there are many pictures to paint, to put it in painter-talk..

 

Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 48 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

  That's the spirit!  A good friend only the same age as me had a heart attack just before Christmas.  All stented up, he got out of hospital within five days, took a week off and was back at work before the New Year.   Its good that the Nationals are back where you first started this year.  You wouldn't want to miss that, never mind that it is a damned site nearer than Wisconsin, or was it Wyoming?........Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Rica -

Now it's clear to me why you have been reading lately all of the books of people exhibiting extraordinary courage, perserverance and survival in incredible circumstances - the sailor mentioned above, the blind guy climbing mountains, the lady escaping from indians to walk a 1000 miles home. 

Sounds like your spirit and mind are fortified for what's ahead of you!

I am also encouraged that you are making plans for Nationals and kids and shows for this year.   Studies show that those who keep making plans and moving forward with life generally live the longest with the best quality of life!   Geeky science but true.  So plan away!  What the mind can conceive you can achieve!

Go Rica Go Rica Go Rica!!!!!!!!

  Daisy-Caregiver- Balo's Concentric Sclerosis.  CAP 5/10/07.  Mino 100 BID 9-1,  Roxy 300 BID 11-5, Rifampin 600mg QD 10-15, Bactrim DS BID 11-3, Diflucan 100mg BID 11-30, Novantrone, Doxy, Azith

Daisy - Husband on CAP 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MS drugs killed him.

Daisy on her own CAP 11/2012. 

Good God, this site breeds heroes, this is the second time today that i'm thinking this.   Not a note of self pity, here.   Rica your great spirit will get you through this as it has got you through everything else you have endured.  

(My recovery after this long pulse has led to a delightful month of terrific daily normal life.)  Great example of living in the moment with your best physical outcome in mind and how to exercise to maximise your recovery.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Rica, I agree with Michele, heroes and heroines abound on this site. From what I gather, you likely have caught this in time to come out relatively unscathed, that is after the procedure. You and Richard have been in my thoughts and prayers in hopes for the confirmation of what you want to hear, and for a speedy recovery after the fact. You are a guiding light and a brave soul and will endure;and I don't say that just because we need you so much, but that your goats do, too! -kk2 :)

 

On Wheldon regime [Doxy, Azith, and Flagyl]  for rrms since October '05.&nbsp Added Amoxicillin 1gm twice daily and LDN 4.5mg qhs October '07; EDSS was 6.5, now 5.5.  United States.

Wheldon Protocol for rrms since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGG's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

Rica, oh Rica,All of the above plus. Your courage is amazing. I will also be thinking of you next Wednesday and will have you in my prayers.
Nancy
PPMS-misdiagnosed 5 years-diagnosed last spring. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuro. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAP 3/2/07 - 200 doxy; azith MWF. Rockville,Md.

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Oh, hell. I was smiling, smiling, smiling, already formulating a reply in my head about how you are clearly getting younger by the minute, then wham. Kicked in the stomach, all air taken from my lungs. SO not fair. If I were closer, I'd feed and milk FOR you for a month, I swear. Since I'm not, I will sit in a quiet place on Wednesday and direct good, positive energy to you. (Inform Richard he will be hounded mercilessly until he gives us an update.)

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Rica, I was just talking to a friend who had this surgery a year ago. She is doing very well now. It took a while for her to get back to work but she was on a healing path. I am wishing the best for you. Such a courageous fighter you are! Another miracle of healing is waiting for you. I will be thinking of you, dear friend. Blessings and healing to you, Raven CAP since 8-05 for Cpn and Mycoplasma P. for MS and/or CFS

Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath

Rica, So awful and not fair, you caught me off guard with your news as well. You are a hero and will pull through with your attitude that keeps us all going. I will be praying for you as well on Wednesday and if Richard can let us know how you are doing we would appreciate it. On Wheldon protocol for MS since April, 2006.  doxy 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyl Pulses start end Sept., LDN 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tini pulses,100 mg diflucan, 4.5 ldn; Wheldon protocol for MS April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

As always, I am surprised at the responses here. I shouldn't be - after all, we are engaged in life-threatening struggles every day. This is the most wonderful community of warm, intelligent, and funny, funny people. I really hope we are able to come together some day. To serious stuff - I haven't told Richard about this blog. He is greatly affected and worries much more about me than I do. There is nothing I can do about this except hope to come out of it ok. How can I miss with all of you behind me? Thanks -

 

Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 48 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica, I'm sitting here dumbfounded with my mouth open  re your email and the news of your surgery. ...... Since I came to this site you were (are) always one of the first to offer support or jump in to give advice... I'm sorry you now have to endure this. 

I am marking my calendar as well -- you will be my in my thoughts and prayers.

Jeanne

 

Jeanne ~CPN  4/2007; HHV6, EBV, CFIDS/FM- diagnosed '07; IBS, prior kidney infections, food allergies, hypothyroid (RAI for Graves in 1998), Adrenal issues (hypo); prior bronchitis/sinus problems. 200 mg/doxy daily & 250 mg AZITH M/W/F, supplement

JeanneRoz ~ DX'd w/ CPN 4/2007; 6/07 -"officially" dx'd w/CFIDS/FM; also: HHV6, EBV, IBS-C, 100 Doxy:BID; 500 mg Biaxin BID; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

 Well Rica, you are such a stalwart for me that I felt as if I'd walked into a wall when I read the latter part of your blog. Blast! Darn! Consarn it! I'll be thinking of you now through Wednesday at least.

Much love to you and Richard... 

CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Protocol: 200mg Doxy, 500mg MWF Azith, Tini 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Rica, Good luck to you, you are a tough cookie. It was quite a shock for me also to read the "Wednesday...." sentence. Wow. Let us know as soon as you can how you are doing. Karen Capozza x ms 1996. started cap 10/05. Started with tini pulses switched to flagyl pulses. Now almost on continous 500mg flagyl but do need breaks. On doxy 200mg/day azith 250 mwf and NAC 700mg. ldn 2.0mg.
dx ms 1996. started cap 10/05. Started with tini pulses switched to flagyl pulses. Now almost on continous 500mg flagyl but do need breaks. On mino 100mg/day biaxin 1000mg day and NAC 600mg. ldn 2.0mg.
Red

Rica,

I too am so sorry to hear this news, Rica.   I have great faith that you will be just fine, but please take care.   We are all pulling for you...

 

On Combined Antibiotic Protocol for Cpn in Rosacea 01/06 - 07/07, On Vit D3 + NAC since 07/07 and daily FIR Sauna since 08/07

Treatment for Rosacea

  • CAP:  01/06-07/07
  • High-Dose Vit D3, NAC:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Hell's bloody bells Rica, your calm strength and determination amaze me once again, you CAPitulate to nothing!

I will be putting all my energy into good thoughts for you and Richard on Wednesday and you will have the prayers and love of many strong people on here behind you.

Elinor ..... from England  on CAP, doxy/roxi/tini  for ME/CFS/lyme borreliosis, positive Cpn and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

Elinor ..... from England  on CAP, doxy/roxi/tini  for ME/CFS/lyme borreliosis, positive Cpn and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

Rica, yours was the first story I read when arriving here in the depths of my MS diagnosis and I thought then that you had true grit. Now I know that you do - along with the many other pathfinders here.

Last night we were reminded of the bravery of Sir Edmund Hillary and Sherpa Tensing conquering Everest (without cellphones!) and I thought of you. If anyone can get to the top of this climb, then you can...your goats leading the way of course.

Fingers and everything else crossed for you on Wednesday. Carol

New Forest, UK. Progressive MSi dx 12/06 LDN 3/07 CAP 6/07: Wheldon

speedbird

I felt like I got kicked in the stomach when I read you have cancer. My thoughts and prayers are with you. I am angry this happened to you. You've already displayed the courage to conquer cancer too. Combined Antibiotic Protocol minocycline, azithromycin, metronidazole for muscle pain, insomnia, interstitial cystitis, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Hey Rica, The original gutsy lady. Fortune favors the brave. My thoughts are with you. Ella Ella- thrill seeker extraordinaire.  RRMS, on Wheldon protocol since 17th March 2006
Ella- thrill seeker extraordinaire.  SPMS, on Wheldon protocol since 17th March 2006

I am sorry that you have been faced with this.  I commend your courage and facing it 'head on' and with your 'head held high'.. 

Mphs, TN. CFS, hypoT (Hashimotos), weak adrenals, 37 w/hormones of 80 yo. right arm neuropathy. + for cpn, myco, EBV, CMV. on NAC 2400mg, doxy 100-2xday, azith 250 m/w/f, and pulsing w/flagyl, estriol, progesterone, synthroid

Mphs, TN. CFS, hypoT (Hashi), adrenal fatigue, hormonal inbalance. right arm neuropathy-getting better. cpn, myco, EBV, CMV, HHV-6. Cap began in 6/07. NAC 2400mg, mino 100mg bid, biaxin 500mg bid. cytomel, flagyl bid continuously.

Rica,

Life sure doesn't seem fair at times, but then, as my Mother always told me, no one ever promised it would be.  You certainly have been dealt more than your share of tough times.  You are a shining light of courage and determination to all you know you.  I will say extra prayers for both you and Richard.  Marion (Brian's wife)

 

ExRacer MS diagnosed in 2002.  EDSS: 6.0.  2400 mg NAC, 500 mg/day Levaquin 9/10/07 t/ru 11/25/07, Doxy 200mg/day since 11/29/07. Azi since 12/6/07. Added other recommended supplements in December.

ExRacer - MS dx 2002.  EDSS: 6.0.  LDN since 2004, NAC, Doxy, Azi MWF, Recommended supplements.  Completed Flagyl pulse 22 on 10/26/09. 
lee

Rica, My thoughts and prayers are with you. I agree with Karen you are one tough cookie. You will overcome this and be at the nationals. Lee sjogren's diagnosed 2/03, 200mg minocin daily, mwf zithromax, flagyl every 3 weeks.

200mg doxy daily, 500 zithromax mwf,flagyl 1000 m-fri.rifampin 2x daily,chloestryramine 2x daily

Rica, my prayers are with you.  I can't begin to share ...., don't know how to help a superhero.  I have a very strong respect for your determination and fight.  While it must be tough to be positive, I hope you can bring our collective insiration with you on Wednesday.  Ken

In pursuit of ABX

Don't Allow What You Know To Get In The Way Of What Might Be

 Rica, I just wanted to let you know you are in my thoughts and prayers, especially tomorrow...please ask her husband, when he has a few moments, to send us a quick update on how you are doing..

Mphs, TN. CFS, hypoT (Hashi), weak adrenals, 37 w/hormones of 80 yo. right arm neuropathy. + for cpn, myco, EBV, CMV. on NAC 3600mg, doxy 100-2xday, azith 250 m/w/f, estriol, progesterone, synthroid, and pulsing w/flagyl.

Mphs, TN. CFS, hypoT (Hashi), adrenal fatigue, hormonal inbalance. right arm neuropathy-getting better. cpn, myco, EBV, CMV, HHV-6. Cap began in 6/07. NAC 2400mg, mino 100mg bid, biaxin 500mg bid. cytomel, flagyl bid continuously.

Rica,

I quickly signed into the sight to take a few minutes for reading.  I saw your post & clicked it though it was big. 

Like others, I was reading along with a smile on my face & then BAMM, no more smile & tears.

Life is full of challenges & you have a brave posture for this one.  I cannot begin to imagine what you must be going through.  This battle will leave scars for which you seem to be prepared.  You are a very brave Samurai spirited warrior.

Everyday you all are in my prayers.  You are a champion Rica.

Image removed.& big hug

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Rica,I had insomnia last night (ate some really dark chocolate after dinner) and spent the time doing what I could to set the universe right for you, to get your qi going and bring apoptosis on the nasty cancer cells. It's not much, but it's all I can do and will keep on doing it in case it might have some effect other than allowing me to feel that I'm doing something. I.E sending good vibes your way and wishing you the very very best. My "prayers" will be with you tomorrow.
Nancy
PPMS-misdiagnosed 5 years-diagnosed last spring. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuro. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAP 3/2/07 - 200 doxy; azith MWF. Rockville,Md.

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

  Rica, very best of luck: you'll come out of this fighting and ready for the Nationals........Sarah   An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Rica, Holding you with thoughts of wholeness.

Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Healing thoughts Rica, sleep well.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Rica- You even got a rare post from Ella--- you rate! I love her tag line: Fortune favors the brave. May it be so. 

CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Protocol: 200mg Doxy, 500mg MWF Azith, Tini 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Hugs, hugs, and more hugs, Rica! Am thinking of you, tonight, and wishing you the best, for tomorrow.

 

Thoughts and prayers and much hope for the best prognosis! Am sure we'll see you back in fighting spirit, sooner than we think!

 

--Minai

 

RRMS, diagnosed 2/04. NAC 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY Restarted CAP with NAC and Doxy 2/07. LDN 4/07. Stopped NAC, started Roxi, again 5/07. Now on full doses of Doxy and Roxi. NAC, again, 7/07. 1st Tinidazole Pulse, 8/11/07. USA

Rica and Richard, I am thinking of you two and hoping/praying for the best possible news. May your Wednesday be filled with the best possible outcome! Please do let us know how you're getting on. I am all smiles, for Rica! :) -kk2 :)

 

On Wheldon regime [Doxy, Azith, and Flagyl]  for rrms since October '05.&nbsp Added Amoxicillin 1gm twice daily and LDN 4.5mg qhs October '07; EDSS was 6.5, now 5.5.  United States.

Wheldon Protocol for rrms since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGG's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

Rica, my prayers and thoughts are with you. You are a champion in every way. Combined Antibiotic Protocol minocycline, azithromycin, metronidazole for muscle pain, insomnia, interstitial cystitis, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Thinking of you today Rica and Richard.....

Elinor ..... from England  on CAP, doxy/roxi/tini  for ME/CFS/lyme borreliosis, positive Cpn and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

Elinor ..... from England  on CAP, doxy/roxi/tini  for ME/CFS/lyme borreliosis, positive Cpn and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

Richard will be posting today or tomorrow, so stay tuned to this channel...

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Rica and Richard - Also thinking of you today...

Daisy-Caregiver- Balo's Concentric Sclerosis.  CAP 5/10/07.  Mino 100 BID 9-1,  Roxy 300 BID 11-5, Rifampin 600mg QD 10-15, Bactrim DS BID 11-3, Diflucan 100mg BID 11-30, Novantrone, Doxy, Azith

Daisy - Husband on CAP 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MS drugs killed him.

Daisy on her own CAP 11/2012. 

hi all rica's surgery went well today. no spread of cancer to lymph nodes. good news! thank you for all your support and caring. richard < p> 

Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 48 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Richard, Great News! Thanks for letting us know. On Wheldon protocol for MS since April, 2006.  doxy 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyl Pulses start end Sept., LDN 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tini pulses,100 mg diflucan, 4.5 ldn; Wheldon protocol for MS April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Thank you for this wonderful news, Richard. I was literally weeping tears of joy for Rica when I read this!!! Hope that she is now resting well. And, that you are, too, --Minai RRMS, diagnosed 2/04. NAC 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY Restarted CAP with NAC and Doxy 2/07. LDN 4/07. Stopped NAC, started Roxi, again 5/07. Now on full doses of Doxy and Roxi. NAC, again, 7/07. 1st Tinidazole Pulse, 8/11/07. USA

It's such a relief to get the good news so soon. Thankyou Richard for thinking of us and lots of love to Rica.

Carol 

New Forest, UK. Progressive MSi dx 12/06 LDN 3/07 CAP 6/07: Wheldon

speedbird

Red

Hi Richard,

This is absolutely wonderful news.  Thanks so much for posting it.   Please give Rica our best, and be sure to let her know we're all hoping she has a swift recovery. We miss her already!

Take care of yourself as well...

On Combined Antibiotic Protocol for Cpn in Rosacea 01/06 - 07/07, On Vit D3 + NAC since 07/07 and daily FIR Sauna since 08/07

Treatment for Rosacea

  • CAP:  01/06-07/07
  • High-Dose Vit D3, NAC:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Richard and Rica, So happy to hear the good news! This must be such a relief. Give Rica a kiss from me! -kk2 :)

 

On Wheldon regime [Doxy, Azith, and Flagyl]  for rrms since October '05.&nbsp Added Amoxicillin 1gm twice daily and LDN 4.5mg qhs October '07; EDSS was 6.5, now 5.5.  United States.

Wheldon Protocol for rrms since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGG's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

C'est magnifique! Mazel tov!
Nancy
PPMS-misdiagnosed 5 years-diagnosed last spring. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuro. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAP 3/2/07 - 200 doxy; azith MWF. Rockville,Md.

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Richard and Rica So much relief. Barbara Used to have multiple sclerosis, on the intermittent Wheldon protocol since March 2006, EDSS 0 for over 4 years

Cured of multiple sclerosis, stopped the Wheldon's protocol in Nov,2008. Use only LDN.

Rica, you are so tough and tender, both. I'm praying for your speedy return to your normal frenetic pace.

 Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Currently: doxy & zith -- continuous; metronidazole -- 5 days on, 7 days off.

Get the research results you paid for: support Open Access

Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent

R & R,

Great news about the lymph nodes, woo whoooo!!

I am exhaling now & will continue my prayer vigil for the best speedy recovery!  After all, there are chores to do--champions to feed, groom & milk.  Look out Nationals!

Image removed.

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

DD

Rica,  Do know you are held lovingly in my prayers as you go through this.  You obviously have what it takes to heal from this too, and I am awed at your strength and wisdom.

Love and Blessings,

 

DD

Dx:CFS/ME;CPn;Post Polio:  On CAP since 3/05. Azith 500mg MWF, Doxy 200mg bid, NAC 1200 mg bid, Calcium Pyruvate 488mg/2.1GM bid, flagyl pulses, (gobs of activated charcoal), B6, Magnesium, Iodine.

DD

Dx:CFS/ME;CPn;Post Polio:  On CAP since 3/05. Azith 500mg MWF, Doxy 200mg bid, NAC 1200 mg bid, Calcium Pyruvate 6GM bid, flagyl pulses,  B6, B12, Magnesium/Potasssium 2400/400 dly, Magnascent, Cholestyramine, D3 2GM dly, .

Just returned from a short visit to my mother and am delighted to read this great news here.   Get better quickly Rica, what a relief for you both...

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.