Today I am eighty days post twenty-six day flagyl pulse and though I have not been around the world, I feel as though I have climbed my share of mountains. I was going to do another long pulse in January but have postponed it for two reasons: the first reason is that I have noticed, as have many of us, that the longer and more intense the pulse, the longer the recovery. It has been no exception with this extended (for me) one. I find this as a signpost for us - don't feel that "this is not working" if you choose to go outside the boundaries of the written protocol. This applies with the regular protocol, also, especially early on when this foe is lining up its defenses. We are writing in blood the new rules. Flagyl flattens our emotions and our intellects in unscripted ways, but in my own forty months, if my experience is representative, our bodies float to the surface, take a deep breath, and begin another long swim to a sometimes temporarily out-of-reach shore. But even that shore is attainable. Steven Callahan, a remarkable sailor, reached it after seventy-seven days adrift. He is very, very tough - and smart - and patient.
My recovery after this long pulse has led to a delightful month of terrific daily normal life. To help in "rebuilding new pathways" - which can REALLY happen, I began Pilates and am on the second level - "Beginning Mat Work". I think this was invented for us whose numbed, now slowly reconnecting, muscles have turned to mush. It zeroes in on and targets exactly those muscles. I discussed with an MS friend yesterday how often I do this and, thinking about it, realized that I had done it five days out of seven this week, and the week is not over yet. That is probably a little higher than my usual average of closer to three or four times a week. After beginning the very basic tape in November, which I did as often as I could, I have tried to increase the schedule, at the same time keeping up my walking or elliptical, doing one or two of the three every day. This leads me to the second reason for this blog. Next Wednesday I will have a double mastectomy. This will make me at least the third female on this site to have cancer or pre-cancer. I have DCIS (ductal carcinoma in situ) on the left. They will take the lymph nodes to examine in the hope that the malignancy is confined. It will be a double mastectomy because there is a 50% chance of cancer on the other side. This surgeon did my biopsy of a year and a half ago (negative) and has watched my progress with interest. His daughter is a patient of my husband's. I will miss no days of my abx or my supps, though they may not be on my regular schedule.