MediTest
27 Apr 2018
Author
Norman Yarvin
Title

A case of very early treatment of MS

Body

David Wheldon has commented recently that the stories of bad side effects may scare people away from the anti-Cpn protocols, especially people with early MS, in whom the side effects can be expected to be mild.  So I'll try to do a bit to counterbalance the stories of bad side effects by relating my own experience.  I suppose that as far as orthodox medicine is concerned, I am in the "probable MS" category, as I have had only one attack, which produced numbness in my feet and in one leg.  As an injury, it was no big deal: the worst it did was to make my walking a bit clumsy (due to lack of

Comments

Norman, thanks for your story, it is going to help me and Ella schedule the introduction of metronidazole when the time comes.   It is also interesting to note the sequence of events of your recovery.

Michele: Spokesperson for Ella on Wheldon protocol since 17th March 2006

from Sussex, UK

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Norman, thanks for sharing your story[thus far].  It has some similarities to mine, however when I got a bulls-eye rash, nobody saw it but me, and it was over a yr later that my neuro based his ms dx on my neg lyme elisa test.  My spinal tap also revealed no oligoclonal bands, but he still called it a "flaming" mri--inflammation I guess.  At the time it seemed like a tacky way to tell me I had ms.

The treatments you have rec'd over time have obviously been to your benefit.  As I read your story of your doctors prescribing Doxy, then being open to adding Azith., I was thinking...if only..if only--

If only we all could be treated empirically, under a doctor's care without having to order meds from overseas.  Your future looks very bright.

"What saves a man is to take a step.  Then another step"

-C.S. Lewis

Wheldon Protocol for rrms since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGG's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

     Great story, Norman. Lucky you started the antibiotics so early. Not many people can "stomach" 2 gm dose of metro at once, myself including!

Cured of multiple sclerosis, stopped the Wheldon's protocol in Nov,2008. Use only LDN.

Norman, Going back and reading old posts today gave me renewed appreciation for your concise style and detailed observations of your experience.  Keep us posted!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

In my above account, I neglected to mention anything about the dietary supplements I've taken.  There's not too much to say; I'm basically taking the Wheldon list of supplements, cutting the odd corner here and there when convenient; I started most of them during the period when I was on minocycline alone.  I haven't noticed much effect from them, but haven't really looked for an effect either.  The coenzyme Q10 and acetyl-L-carnitine might have improved my tolerance for cold a bit, but it's hard to say.  The one supplement I expected to see an effect from was, of course, the N-acetyl-cysteine.  There was indeed an effect: one 600 mg pill made me tired and a bit dumber, starting a couple of hours after I took the pill, and lasting for 8 hours or so.  Repeating the experiment a couple of days later produced the same sort of effect.  Repeating it again did the same, except that the strength of the reaction diminished with each successive pill, until after about eight of them it was hardly noticeable; then I started taking it continuously (twice a day), which still produced no noticeable effect.  I didn't seem to have any reactions to it outside the brain: no runny nose, aches, etc.

But that, I recently found, is because 600 mg twice a day was too low a dose to be effective.  Shortly after writing the above message, I increased it to 1200 mg twice a day, as an experiment, and was rewarded with three weeks of NAC-flu: the same sort of tiredness and mental slowness, plus aches, plus a mildly runny nose.  It even went down into my lungs a bit (as the disease had, the last couple of times I'd had a bad respiratory infection).  The total amount of killing of EBs that was done was maybe twenty or fifty times higher than it had been at 600 mg, which seems to mean that 600 mg was not an effective dose for me, even when taken twice a day for several months.

I'm on the same dose.  Had NAC flu a few days with the higher dose, then nothing.  Flagyl seems to bring it on for a few hours each pulse, but that's about it.  I guess I'll be taking it indefinitely, though, considering the benefit. Once I clear my system, I don't ever want to go through this again.  I seriously advocate a year of abx therapy for anyone in middle age; I think so many of the problems we attribute to 'aging' are actually cpn-related.  Don't want to live forever, just want to have good quality of life while I'm here.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Higher Dose of NAC? I noticed that Mac and Norman both mention using a higher dose of NAC. You both mentioned increased die off symptoms. Any other side effects to taking more of it? Do you still take the higher dose? Anyone else try this?

Raven
CAP since 8-05 for MS and/or CFS 

Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath

I know this is an old post but for new people reaching it, seemed sensible to add further comment.

I started on NAC slowly. 600mg a day for 2 days then slowly increased it. I got very few reactions apart from a slight sinusy pessure headache, until I reached 2400mg a day which I took all in one hit. Then I got the runny nose, sneezing, watery eyes, strange stabbing pains, not uncomfortable, just interesting.

This went on for a week or so, then I adjusted the dose by taking 1200mg twice a day and I've been on that ever since. Occasionally I get sinus pressure but nothing debilitating. I think I'll be taking that forever. 

Berkshire, UK. Diagnosed MS Feb 4th 2008.

NAC first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th.
No GP/Neuro support. Self medicating with assistance from D W.
Starting Doxy April 2008

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.No GP/Neuro support. Self medicating with help from David Wheldon. Started CAP 20th April

I, too, vote for a second look at the stories of those of us who experience very mild response to the protocol, not only for balance, but to allay the fears of those contemplating whether or not to start this treatment.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I just increased my NAC from 2.5 gms to 3 which coincided with sore throat feeling & my Herpes I to start kicking & fussing.  I had to increase my L Lysine as well for the time being.

All this, but....I had a travel day from hell on the 15th, went from 100 F to about 20 F, it was far tooo eventful for my liking, so that could have put the stress on my body & not the NAC!

It is time for another pulse! Start tomorrow!~

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

I also use 2x1200mg of Nac per day. It is recommended in Dr.Wheldon protocol. I noticed new dying off, when I increased dose, but then nothing else.

Prague, The Czech Republic, On Wheldon protocol for Cpn and Mycoplasma since 02/18/2006.

Stratton/Wheldon protocol 02/2006 - 10/11 for CFS and many problems 30 years

I'm still on the higher dose (and, after a month of it, still experiencing some die-off symptoms, although they've tailed off considerably).  I haven't noticed any other side effects.

lots of trouble on this sitr, please pm me if you have ever followed the work of dr. gaeey gordon?

diagnosed MS Jan.2000 ,  chronic neurological lyme disease Nov.2002.doxy 100 mg. 1BID. roxy.150 mg.? BID,adding rifampin soon, pulsed tini. every 3 weeks, as of oct.17/08, rifampin,naltrexone (LDN),NAC, nystatin, major wheldon supplemrnts daily,