I just completed my 6th flagyli pulse yesterday. It was supposed to be for 10 days but I struggled to get through 7 days. I keep having recurrent UTIs and am on an additional antibiotic for that so the combination was a lot to take. I suffered from body aches and nausea this time as well as another terrific headache yesterday. Plus, I just don't feel well overall starting about the 3rd day of flagyl. I feel toxic! I will make sure I take anti-porphyriai measures regularly next time to keep the bad feelings at bay.
Interestingly, today (with no flagyl) I feel good. So I know it is the flagyl, and maybe the combo, that does this to me.
Next month I will keep up the Emergen C, glucose and charcoal on a regular basis. (Maybe by then we will be able to get to the bottom of the UTIs).
Lori
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Be tough, Lori. You're
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
I have never made it past 5
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On Wheldon protocol for MSi since April, 2006. doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma
Thanks Mack and Wiggy for
Thanks Mack and Wiggy for your positive comments. They help a lot!
Lori
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Lori, you might try
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98% well and going for 100! CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi Also EBVi and HHV6 My grateful thanks to all the CAP docs!!!
Lori, will your provider
Lori, will your provider consider the tinidazole substitution in his protocol? In some ways I could understand if he does not. Just a thought.
Louise
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Louise CFSi, CPN+/Bb+, Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphoria & Endotoxinsi PRN, Doxy100daily, Roxi300BID, Tinii 500mgBID pulses, VitD3-4000IU, Magnascent Iodine,{S.O.D.3/QD[KAL Brand], +Pyruvate 3.75G +SAM-e For Energy support
Raven-unfortunately I have
Raven-unfortunately I have been doing cranberry capsules. Am currently undergoing a few tests to see what is up.
Louise-actually the doctor had told me originally that he would switch me to tinii if flagyli was too hard to take. When I saw him in June I told him I was tolerating it ok. If flagyl causes me problems the next time I am going to contact him to ask about switching then.
Lori
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Lori- you've done an
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
hey guys, nice reading. I
hey guys, nice reading. I also felt that 5 days pulse is sort of short, now i passed day#7 at my current pulse and still alive :)))
I am trying to do for 10 days if i am able to. It would be great. Just one question i find annoying to take pills so many times per day, so i take the full dose of flagyli (1200mg) but twice a day. i read generally it should be given every 8 hours. does it REALLY matter if i take 400mg 3 times, or 600 mg twice a day? I dont know about others but i feel so great with flagyl, even though it makes me tired and so on...Also that i started the whole thing a few months ago and able to take doxyi, azith, NACi, flagyl in full dose for quite long. I hope i can finish it sometime next year......
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doxy200, azith250, NACi 2400, Metroi 1250(once a month), supplementsi, vitaminsi.
Trying for ten days at
Trying for ten days at pulse six? Wow. My hat goes off to you (at the same time my heart goes out to you). I didn't make it past five days until pulse #10 and then it was only to go for six days - and I paid for that sixth day with significant paranoia for the next two weeks. I hope you don't have a similar experience.
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CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week), 500 mg Amoxicillini (6 x day). Thirteenth pulse metronidazolei + INHi completed 9/28/2008.
The doctor at Vanderbilt
The doctor at Vanderbilt told me to go 10 days. I wouldn't have attempted it on my own! But I have been in contact with him today and he thinks it would be best to switch to tindazole. So I guess that is what I'll be doing next.
I HATE the taste of flagyli. Is tinii better in that regard?
Lori
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Veressv - I often split my
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Tinii had been easy on my
Tinii had been easy on my taste buds and my stomach so that part of the pulse is easier on me.
Louise
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Louise CFSi, CPN+/Bb+, Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphoria & Endotoxinsi PRN, Doxy100daily, Roxi300BID, Tinii 500mgBID pulses, VitD3-4000IU, Magnascent Iodine,{S.O.D.3/QD[KAL Brand], +Pyruvate 3.75G +SAM-e For Energy support
I've tried both, and to me
I've tried both, and to me they both taste the same... But then I have a heavy Cpni infection in all areas of my head, including my tongue, so it may be different for you.
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Michele, How is your
Michele, How is your experience with Doxyi? I have now tried both US generic capsules and US generic Tablets. I have been hoping that after a year of passing it into my gut that any gut lining CPni may be put out to pasture. I would like to work toward the ability that many here report, such as just take it with a large empty glass of water or a cracker on an empty stomach and no nausea, fear of vomitting in public etc that constantly grabs me when I very seldom catch myself in need of taking it empty stomached.
The tablets seem better by a small amount even with full meal. And last evening I was away most of the day with some volunteer work. We moved the new minister into his parsonage and with an hour to spare I dashed home and took the full 200 doxy and 300Roxi that I have been doing all at once for the past week as an experiment for myself. I'll not go there about what I am finding in other ways will talk here to Stomach response on very empty stomach with just an oat cake ( love those oat cakes by the way, learned to love them in the UK 20 years ago) By the time I had driven back to a scheduled meeting, nausea began to rear its now also slightly pain provoking head. A strong smell of crayons in the humid closed up room contributed to nausea, I kept quiet and still hoping that an urgent egress would not be forthcoming. I had about 8 oz of water available and I finished it down, and after about an hour from taking the meds nausea and pain did as they do when the doxy goes into the duodenum, instantly disappeared. I do have a bottle of flagyli available to me. I have not tried even one.
I do have a heavy CPn infection, porphoria is ever present for me. Currently I have moved to a 6 week course of nightly Cholestyramine in the late evening last thing after everything else has had a chance to move into and along in the small intestine. I am priming with a modest piece of cheese, waiting about 15-20 minutes, taking the cholestyramine 1 packet with an extra glass of water, sitting for a time of fquiet relaxation then going to sleep. The results of this have been much improved when I check that wonderful reactions and remedies list, I am having very few X's for which I am thankful and feeling alert, in check with my emotions, and energy to move all in this time of heat with no airconditioning presently.
I will likely try the Flagyl and do my course of Clari, but for now stable is good and anything I can do to avert Nausea and abd pain resulting form the CAP is high on my list of must does. I applaud those who find the ingestion of these substances Doxy and Flagyl with some envy.
JMHO, Louise
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Louise CFSi, CPN+/Bb+, Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphoria & Endotoxinsi PRN, Doxy100daily, Roxi300BID, Tinii 500mgBID pulses, VitD3-4000IU, Magnascent Iodine,{S.O.D.3/QD[KAL Brand], +Pyruvate 3.75G +SAM-e For Energy support
Lori,You're tough and
Lori,
You're tough and you're making it happen. Kim's using
Chlorella this time around, while to early to tell, she's doing well in terms of side effects. I think this stuff is helping, but again, it's too early too tell.
Keep it going girl, you're beating it.
Ken
good job Lori, you are one
good job Lori, you are one tough cookie! keep those moppers going.
peace
r
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#14 1000 mg X 5 days 9-19-08Doxyi does not seem to give
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006