Submitted by froggy 1965 on Thu, 2016-07-14 09:36

ok so started raferpin - not a whole lot of difference so far but seem to have regained apperite which has to be be good, still not walking,pain in feet as gefore sill living in hope.   I hope for more improvements,  especially walking and brains seem tolive in confision - not good anyway still convin yced that I will recover its a very slow process for me  anyway best wishes to all on this marathon, love Suzannne

Suzanne, I was wondering if you had started rifampicin yet and was going to write to you later.  I think that in these early stages, to be able to cope with the drug is a good thing because many people can't.  If I had started it earlier than at six months I don't think I would have been able to.  The next good thing though, is that you have regained your appetite.  I have been looking back to try to remember how my appetite was affected with all this.  I do remember that during pulses I completely lost my appetite but I really can't remember any difference between doxycycline and rifampicin.  I did though find a photograph of me painting, taken from behind, when on interrmittent treatment and therefore not taking rifampicin, and my jeans looked awfully baggy and loose.

Good luck with this next stage of treatment!...........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.