MediTest
27 Apr 2018
Author
loriyas
Title

2nd flagyl pulse

Body

Finished my second pulse of flagyl yesterday. Have to say I am glad it is over. Started out fine for the first 2 days, same energy etc. Then the 3rd day it hit me. Again, it is a twisted feeling to be glad to feel bad! My energy level plummeted. I had to get out the Provigil, which I had not needed, and even that didn't really cut it. I started each day out okay but by mid-morning I was really tired and couldn't shake it no matter what. As I look back on my notes of the week, this is what I experienced: #1 issue this time was fatigue.

Comments

Lori, You're doing really well. Once you get over the first big die-offs, the energy thing will resolve itself, too. You'll be doing more and not even realizing it, but we'll tell you when we notice it! Congrats!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Lori - Wierd though this seems - I know you get it - Congrats on feeling bad !  May it quickly lead to long term good health ! 

 

Daisy - Husband on CAP 5/07.  Mino, Roxy, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxy, Azithromycin, Flagyl

Daisy - Husband on CAP 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MS drugs killed him. Daisy on her own CAP 11/2012. 

Started Vanderbilt protocol 1/9/08  Rifampin twice a day, azithromycin MWF, flagyl 7 days/month,  b12 injection monthly NAC daily, DHA

 Started Vanderbilt protocol 1/9/08  Rifampin once a day, b12 injection monthly , vitamin D 50,000 IU weekly

Thanks MacK and Daisy! Started Vanderbilt protocol 1/9/08  Rifampin twice a day, azithromycin MWF, flagyl 7 days/month,  b12 injection monthly NAC daily, DHA

 Started Vanderbilt protocol 1/9/08  Rifampin once a day, b12 injection monthly , vitamin D 50,000 IU weekly

 Way to hang on Lori! We'll get those "big girl" shoes before you know it. Cheers to #2 and god willing, many more........ Image removed.

 

16yrs RRMS-2yrs SPMS. Rifampin, Azithromycin, Copaxone, Avonex, Novantrone, Provigil, 5gm NAC, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wait to lose brain fog & wear real girl shoes.

RRMS since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagyl Copaxone, Avonex, Novantrone, Provigil, 5gm NAC, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa

Lori, congratulations! It is so interesting that you are on Rifampin. As for the LDN - I find it interesting that you have stopped it - I have only recently begun to learn about it in earnest. With MS AND cancer, I now have 2 very good reasons to be on it, and plan to start next week. Maybe I missed why you stopped - I have heard absolutely nothi9ng bad about it - only good. The latest I heard is that there are people who have been on it for years - up to 17 - with NO side effects.

 

Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 49 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Congratulations!  

 

CAP for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zith (3 x week) ceased 3/2008, 150 mg Roxi (2 x day) starting 3/2008. Fifth pulse metronidazole completed 2/19/2008.

CAP for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazole + INH completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

Hi RicaI also felt that the LDN was a double benefit to me for the same reason you have.  As you know, I had breast cancer 2 years ago, which was removed via lumpectomy and radiation.  So I felt the LDN was helpful with both that and MS.  The Vanderbilt doc wanted me to stop as I was initiating the abx protocol.  That way, he said, if I had any reactions as I was adding antibiotics we could tell which one was causing it.  I had started one antibiotic, waited 2 weeks then added the second, then waited 2 weeks and added the third.  So now that I have been through 2 flagyl pulses and tolerate all antibiotics I feel that I can go back on the LDN.  I plan to do that after I have liver function testing probably next week.  That way, if anything is off we won't be able to blame it on LDN.  But when I was on it I felt it did something.  Can't say specifically just felt better. I say you should keep on looking into it for yourself also.  No way to know until you try!Lori Started Vanderbilt protocol 1/9/08  Rifampin twice a day, azithromycin MWF, flagyl 7 days/month,  b12 injection monthly NAC daily, DHA

 Started Vanderbilt protocol 1/9/08  Rifampin once a day, b12 injection monthly , vitamin D 50,000 IU weekly

Congrats on #2 Lori,

I am happy you have been feeling bad!  Good job!

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 2-26-08 7th pulse 2 X 375 mg 2day

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Way to go Lori, now you know what we have been talking about.   I don't know about you but in my experience it was much more bearable than I had feared.   Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

MichelleIt has definitely been better thus far than I had expected (knock on wood!)  Not that I expect it to be each time (although would be nice).  As I said before, having some reactions is actually better than having none because then I know this is doing something! Started Vanderbilt protocol 1/9/08  Rifampin twice a day, azithromycin MWF, flagyl 7 days/month,  b12 injection monthly NAC daily, DHA

 Started Vanderbilt protocol 1/9/08  Rifampin once a day, b12 injection monthly , vitamin D 50,000 IU weekly