1st week of abx

Submitted by robertd on Sat, 2007-09-08 15:51

Saturday has now devolved into the day I take stock of my progress and make any changes. I've now reached the full dosage for the abx and increased to 1800mg for NAC. I have no major effects to report, is that good - is it bad - toss for it. However I seem to be trying to work my way through the entire gamut of minor unpleasant effects - tingling feet and hands, restless left leg, muscle pain, small rash on chest, some facial flushing, upset stomach and high pitched ringing in my ears - par for the course. If it wasn't for this site, I'd have myself put down.

On the plus side, my writing and typing are getting slightly better, off and on. My balance remains better but is not improving any but it is really early days after all. A strange effect is that a bad scalp condition I've had since I was young (large amounts of white flakes) seems to be improving.

My fatigue level remains the same and I was reminded of that quite strongly. I spent 2½ hrs mixing cement (yes - I know!) on Wednesday as my brother and I are renovating a house. I was told about my mistake by a sharp slap on the back of my head and I've spent the rest of the week recovering.

Robert, what you have here is much better than being slammed. Each one of these separately might bother you like a fly, but together they are just a good sign. (I could say something like - just wait, your time will come). Good start!

 

Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 44 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rob, you are doing great for the stage you are at!

I have that scalp flakiness & buried under the flakes are little sores, however; mine has not disappeared as of yet.  Here's hoping.

We have something in common, doing too much & having trouble pacing yourself.  Smarten up!!! lol Image removed.

Blessings

Ruth

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8-21-07 1st pulse 1 X 250 mg Metro

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Robert, Great job - I havn't got up to 1800 of NAC yet :) On Wheldon protocol for MS since April, 2006.  doxy 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyl Pulses start end Sept., LDN 2004

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tini pulses,100 mg diflucan, 4.5 ldn; Wheldon protocol for MS April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Um, they shoot horses, don't they? I'm restoring a house, too, and yesterday was caught helping to carry sacks of lime mix for plastering. The contractor chastised me and he doesn't even know how sick I was! I know it's a fine line between quitting before you're actually wiped out and being called a wimp, but you'll learn your limits as you progress on the protocol. So far, it sounds like you may have joined the ranks of those of us who caught it so early, we experience little backlash. That's the best thing you can wish for!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Robert - Congratulations and may your treatment always go easily and with good results!  You are off to a strong start!

The flaking scalp referred to in this post is usually caused by a fungal/yeast  infection - pityrosporum .  Now before you or others possibly freak out - almost everyone whether they are flaking or not has pityrosporum living on the skin of the scalp.  The problem becomes when the yeast overgrows and this is what may lead to the scalp flaking (dandruff) or flaking of other areas of skin (eyebrows/beard/etc...).  

 When the skin is inflammed (pink/raised, etc...) plus flaking then you have a fancier name - seborrhoeic dermatitis - it's all still usually excess yeast though.  

 An underperforming immune system such as one paralyzed by cell wall deficient stealth pathogens can allow the yeast to overgrow. 

As your immune system re regulates then the yeast is brought back under control - usually quiet naturally and the flaking then stops.  There are other things that can also cause the yeast to overgrow but the bottom line - it's a yeast.  A fungus among us, if you will pardon the pun.   This could also be true for "jock itch" and "athletes foot" also caused by a yeast/fungus. 

So if yours is already resolving, your immune system may be improving as a possible theory! 

A very inexpensive and usually quiet effect solution for skin yeast is Grapefruit Seed Extract applied in a diluted solution.  I like to put about 15 to 20 drops in two ounces (60ml) of bottled water.  Shake up and then apply liberally to scalp or skin until problem disappears.  Usually there is massive improvement within 24 to 48 hours.  If the Grapefruit Seed Extract solution doesn't resolve the problem within a week or if the problem becomes worse - of course stop and go see a dermatologist.  If the skin is broken/open sores or is painful of course go see the dermatologist first but if you just have classic dandruff/scalp flaking - you might try the inexpensive Grapefruit Seed Extract solution. 

Daisy-Caregiver- Balo's Concentric Sclerosis. Began CAP 5/10/07. Doxy 200 mg, Mino 100 BID 9/1/07, AZI 250mg MWF, NAC 600 to 1200 mg, Flagyl Pulses, Novantrone, Prednisone and daily pound of supplements.

Daisy - Husband on CAP 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MS drugs killed him.

Daisy on her own CAP 11/2012. 

Thanks for the info Daisy, yeast, nasty yeast on my head.  Nice!!!!

It is improving but I am going to take more Pau d'arco to get the beast under control!!!  the grapefruit seed solution is greatly appreciated, has to be better than Valisone that is highly alcohol based!

Grace & Peace

Ruth

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8-21-07 1st pulse 1 X 250 mg Metro

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

 Robert- You are in a fine tradition here, at least among some of us, of "anything worth doing is worth overdoing!" I am one of the charter members of that club, and I welcome you to our ranks!

CAP for Chlamydia pneumonia since 11/04. 25yrs CFS & FMS- Currently: 300mg INH, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Tini daily (Taking a break from continuous protocol)

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Robert,  Terrific news!  "No major effects," only small nuisance effects plus improvement make you a model.  When and if you hit a rough patch, this post will be a good thing to bolster your resolve.  Best wishes on your journey.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, antivirals, heavy metals chelation, LDN, Metanx, Lunesta, GF/CF diet, Lauricidin, oral IgG/lactoferrin/IGF-1 booster, astaxanthin, gamma oryzanol.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Good start Robert, I sure hope things continue smoothly for you.

Daisy, thanks for the information on pityrosporum, one of the last symptoms I had before starting the ABX, was a flaking scalp.   It had never occured before and led to more denuding, and until I started the protocol three months later there was no hair regrowth, just more flakes than hair.  All gone now...

Michele (UK) GFA: Wheldon CAP1st May 2006 . Daily Doxy, Azi MWF, Flagyl at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMS Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Thanks for the kind welcome folks. I've joined a rather exclusive but welcoming and supportive club where nobody in reality wants to be. These past weeks have seemed like climbing the first pitch and now I've reached the first plateau and hopefully I can now just get on with it.

  Thanks for the info Daisy, I've tried everything for years, but not Grapefruit seed extract. I'll give it a go.

Robert - MS for 16yrs. CAP since Jul 07, NAC 1800mg, Doxy 200mg daily, Azith 250 mg MWF.

MS for 20yrs. CAP since Jul 07, NAC 2400mg, Doxy 200mg daily, Azith 250 mg MWF, Flagyl for 4yrs.