1 year and 9 months on CAP.
I didn't even notice how time went by. It's been 1 year and 9 months since I started CAPi. When I started, I thought I'd be on it only for a year. Then I hoped to stop at 2 years mark but now I see that I may need a bit more time b/c I still have a few unresolved symptoms.
I am guilty though for taking about 3-4 weeks break from treatment this summer. It happened sponteneously. I ran out of meds, didn't refill on time, we needed to go away for vacation, oh well, many excuses. The truth is that I am burnt out. I put myself back on track but I can't wait when the treatment will be over.
In general I feel well. So well that I can work a 10-hr day without a break and then come home and watch TV for a little while. I have these long days may be a couple of times a week. I go to the GYM right now twice a week for weight lifting/treadmill and additionally, I work out at home sometimes if I am not lazy or busy. This really improved my stamina greatly but still not to the level of 3-4 years ago, just before my sickness.
right foot pain,
painful heartbeat with heart palps occasionally. My heart palps were caught on holter monitor recently and they are PVC and PAC. Almost 500 PVCs in 24 hrs but strangely enough I experience them only for a few days once in a few months. I have no clue what triggers them.
Occasional brain fog.
New complaint that appeared when I was off the CAP, unfortunately:
Left wrist/hand pain and mild swelling.
I am happy with my health today because I feel myself functional once again. And at this point I am finding it's hard to stay motivated to keep going with this program.
I am having some weird side effects now. Different than what I used to have. Now it is mainly a"drunken" state. I feel like my head is swollen inside and coordination seems to suffer. I am also having a hard time to tolerate Flagyli for more than a week. I become very irritable, grumpy, weak and whippy, and this "drunken" feeling again.
My provider thinks that it is due to fungal/candida issue. She told that being "Drunk" that I feel is a classic presentation. I wonder if anyone else experienced it? I ordered Nystatin online, soon will arrive.