Here I am, day 1 of pulse 13. I'm really surprised at how fast this has really gone by. It's not just the CAP, it's my life, just swinging on by, day by day, one after the next. It may be that I'm just eager to get through this, eager to get to the other side and some dramatic improvement. 13 pulses, afterall, isn't a minor effort. I've been doing this for a while now.
Yes, I know, I'm sounding impatient again. Really, can anyone blame me. Don't we all want it to happen sooner than later? It's just part of the reality of it that it takes the time that it takes, that it can't be expedited. I'm okay with that, just flailing at it but by no means going to stop. This is a mission, a goal I won't give up on if there is any chance that it may come through at some point.
Okay, that was my two paragraphs of reflection on the path that's gotten me here. Onward, looking around, looking forward.
There are couple of things that have popped up lately which I thought I would mention. First, a symptom I've had with MS is a complete lack of tolerance for heat and cold. Over the winter, I felt like I was tolerating the cold better. Now, I think I may be tolerating the heat better too.
In the past, temperatures above 80F have given me trouble causing all of my systems to worsen progressively, the warmer the temperature became. Where I live, there have been a number of days and weeks where the temperature has been in a range that would have given me trouble but this time it doesn't seem to be doing that.
Now granted, I'm still paranoid, so I don't push my luck and stay out in it any longer than I have to...but...I have walked around in it, traveling from a parking garage up a street and into a building, and nothing seemed awry. Even driving around, I've opened the windows and it's felt comfortable where in the past it hasn't. So I'm likely to take it easy through the summer, but maybe this fall I'll give it more time out in it to see whether or not this is as much of an improvement as I think it might be, hope it might be.
Another thing that's been going on is that I've started taking vitamin K again after running out and not taking it for about 8 weeks. Bruising disappeared. I went from obvious bruising to non-existent bruising. The vitamin K is clearly helping in that regard, no question about it. As such, I think it might be a supplement that should be part of the CAP supplements.
Now with respect to bruising, I should mention that I've had bruises come and go since being on the CAP, many times, but they don't entirely go. I seem to have some remaining dark area under the skin...darker than the skin but no dark like a bruise. It's like the bruise healed and went away, but left a scar under the skin. This something that's only happened to me, visably, since being on the CAP. I can only speculate that it's some kind of scar tissue, but....that's not entirely reasonable since the bruise area is always much larger than the point of contact that results in the bruise. The mysteries continue I guess.
I continue my evangelizing the Cpn studies to people I meet with MS or MS like illnesses. I met another person about two weeks ago that I shared it with. She had been working with several doctors who have not been able to help identify the cause of the problem. I told her about Cpn and pointed her at DW's site and Cpnhelp.org for info and answers.
Plus, a friend with MS that I told about Cpn last winter told me just today that her hair is falling out. I sent her a link to Michele's blog about hair loss and recovery on the CAP. We'll see what she thinks about it.
So, on through pulse 13 I go. I'll keep you posted if I have anything different happen on this one.