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I finished my 10th pulse with Tindamax yesterday.  It was a 7 day pulse.  I would say that this pulse was not quite as easy as the previous.  Every month is different.  This time I don't wonder if Tindamax is really doing anything for me.  With my reaction I know it is.  I still didn't feel as badly as I did with Flagyli but definitely knew I was doing a pulse this time.  As always, I do fine the first couple of days.  But by the 4th day I feel like it is hitting something.  On 4th day I had a headache all day (not as severe as in the past but still there).  On the 5th day I was so tired all I wanted to do was lay around-fortunately is was Saturday with lots of college football to watch!  By taking it easy on Saturday I felt much better on Sunday and was able to go to a wedding with no trouble at all.

Last month Ken asked me exactly what changes I have seen over the past several months.  I reviewed my journal and this is what I came up with:

-My balance/walking is very good.  Prior to starting antibioticsi it was good but I did stumble some.

-Dizziness is  mostly gone.  Up until about a month ago it was a problem and I found that glucose tablets helped with it.  I haven't needed them in quite a while. (although they help with die-off too)

-Not much in the way of tingling of my left hand and foot.  If I pay attention I can tell it is still there a little.  But if i don't think about it I don't notice it at all.  I imagine this little bit left is from permanent damage-just my guess.

-Double vision occurs only at night when laying down and watching television.  I don't remember the last time I used my prism glasses.

-I have been having trouble with my feet hurting for the past year and a half.  They don't hurt nearly as much as they did.  I was even able to wear heels a little while last week. (Guys probably don't care about this but the girls will know what a big deal this is!)

-I still sneeze a lot, not only when I do NAC but at other times too.  This says that the antibiotics still have an effect.

-Most important observation to me is that of my husband.  He continues to comment on how much better I seem.  He told me that I look healthy.  My daughter's friend's mother commented to my daughter how healthy I am looking.  These comments mean so much to me as it validates  what I have been feeling and observing in myself.

-It is such a domino effect-I have been working out regularly because I have felt well enough to do it.  Then by working out I feel better.  So it goes around and around.

I am not done with this by any stretch of the imagination.  I know and feel that I still have MSi.  I don't want anyone to think that in a year you can be all better!  I am in it for the long haul.  I go back to Vanderbilt in February and will have an MRI (brain and spine) before I go.  I am so looking forward to seeing what the MRI finds.  But at this point I am so glad I started this journey last January. Thanks to all of you who encouraged me to proceed!

Lori 

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